Child Neurology Education and Research Foundation

Nonprofit profile at a glance

EIN
411984675
IRS 990 coverage
2011–2024
Forms available
Form 990 2024
Location
Lexington, KY, USA
Phone
8884173435
Rating
74
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Nerve, Muscle, Bone Diseases Research

Official website

Reported finances

Revenue
$1,263,681
Expenses
$1,885,833
Assets
$739,008
Liabilities
$469,604

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

25 people listed

Executive titles in this filing

  • Amy Brin Jan - Feb (Executive Director)
  • Lindsey Taveren Jul - Dec (Interim Executive Director)
  • Breanna McCormley Mar - Jul (Interim Executive Director)
  • Dr Peter Kang (Ex Officio Child Neurology Society President)
  • Dr Yasmin Khakoo (Ex Officio Child Neurology Society President Elect)
  • Monique Terrell (Ex Officio Child Neurology Society Executive Director Non-voting Member)

Highest reported compensation

  • Amy Brin Jan - Feb (Executive Director): $325,921 total reported compensation
  • Lindsey Taveren Jul - Dec (Interim Executive Director): $158,436 total reported compensation
  • Allyson Eyermann (Deputy Director): $148,779 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The mission of the Child Neurology Foundation is to serve as a collaborative center of education, resources, and support for children and their families living with neurologic conditions, and facilitate connection with medical professionals who care for them. The Child Neurology Foundation connects partners from all areas of the child neurology community so those navigating the journey of disease diagnosis, management, and care have the ongoing support from those dedicated to treatments and cures. Our expanding network of patients and caregivers, volunteers and advocates, researchers and clinicians is committed to helping one another along the path that leads to the best quality of care - and the highest quality of life-for every child.

What it reported doing in 2024

RESEARCH GRANTS: Since 2001, CNF has proudly awarded grants and scholarships totaling over $6.3M to child neurologists, medical students, institutions, and researchers who are working on treatments and cures for pediatric neurologic diseases. To further the study of solutions in the areas of Transition of Care and Care Coordination, the Foundation awarded thirteen organizations $26,000 Quality Improvement Grants in 2024. To further support and interest in the field of child neurology, the Foundation awarded four Dr. Kenneth F. Swaiman Medical Student Scholarships in the amount of $6,000 for medical students interested in exploring a career in child neurology, plus $1,500 travel stipend for attendance at the Child Neurology Society Annual Meeting. The Foundation further awarded the annual Neurodevelopmental Disabilities Summer Research Scholarship of $3,500 to a medical student who has an interest in training in neurodevelopmental disabilities or child neurology.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Hybrid. The nonprofit split its reported program spending across 73% for direct work, and 27% for grants.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of total spending goes to programs and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 58
  • Transparency & Controls: 83
  • Accountability: 100
  • Sustainability: 9
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 74.3%; rating input score 74
  • Program expense ratio: 48.9%; rating input score 49
  • Fundraising efficiency: $1.84 raised per $1 spent on fundraising; rating input score 5; 5th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 93.3%; rating input score 93; 22nd percentile among comparable filings
  • Pay-setting controls: 4 of 6 controls in place; rating input score 67
    • Compensation committee: Pass
    • Independent consultant: Missing
    • Other Form 990s reviewed: Pass
    • Written employment contract: Pass
    • Compensation survey or study: Missing
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 93.8%; rating input score 94; 41st percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -49.2%; rating input score 3; 3rd percentile among comparable filings
  • Total-asset coverage ratio: 0.39; rating input score 18; 18th percentile among comparable filings
  • Liabilities to assets ratio: 0.64; rating input score 12; 12th percentile among comparable filings
  • Officer compensation ratio: 38.9%; rating input score 4; 4th percentile among comparable filings

Growth

  • Program expense growth: 11.9% per year; rating input score 100; 68th percentile among comparable filings
  • Revenue growth: 9.4% per year; rating input score 100; 64th percentile among comparable filings
  • Asset growth: 8.3% per year; rating input score 100; 53rd percentile among comparable filings

Details

  • Where the money goes: 74.3% of revenue deployed · 48.9% of spending went to programs
  • Governance: 14 of 14 board members independent · 8 of 8 filing controls reported
  • Programs: 2 filed program accomplishments · $923K in reported program spending
  • Leadership: top reported pay $326K · 25 people listed · 4 of 6 pay-setting controls reported
  • Consistency: 44 of 45 current checks pass · 1 finding to review
  • Schedules: 7 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 14 filing years from 2011 to 2024
  • Contacts: How to reach this organization
  • Money network: 22 filed money-flow records
  • Related organizations: 18 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Program expense ratio scored 49/100.
  • High — Financial Efficiency: Fundraising efficiency scored 5/100.
  • High — Sustainability: Operating margin scored 3/100.
  • High — Sustainability: Total-asset coverage ratio scored 18/100.
  • High — Sustainability: Officer compensation ratio scored 4/100.
  • High — Sustainability: Liabilities to assets ratio scored 12/100.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.