The Hemophilia Alliance Group Purchasing Organization

Nonprofit profile at a glance

EIN
202529619
IRS 990 coverage
2010–2024
Forms available
Form 990 2024
Location
Clearwater, FL, USA
Phone
2152799236
Rating
81
Verdict
STRONG
Rating confidence
Moderate
Sector
Support N.E.C.

Official website

Reported finances

Revenue
$10,882,096
Expenses
$8,817,944
Assets
$26,037,862
Liabilities
$12,953,966

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

24 people listed

Executive titles in this filing

  • JEFFREY BLAKE (PRESIDENT/CEO)
  • JOSEPH N PUGLIESE (FORMER PRESIDENT/CEO)

Highest reported compensation

  • JEFFREY BLAKE (PRESIDENT/CEO): $447,323 total reported compensation
  • JOSEPH N PUGLIESE (FORMER PRESIDENT/CEO): $298,100 total reported compensation
  • JENNIFER BORRILLO (SVP MEMBER & COMM. RELATIONS): $295,492 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The hemophilia alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.

What it reported doing in 2024

To facilitate purchasing terms and favorable pricing for members to obtain blood clotting factor and other products used to treat individuals with hemophilia or related bleeding disorders. Counseling centers on complying with state & federal law and grant requirements, aiding in the production of educational pieces, promoting the value of the comprehensive care model to policy makers, patients and third-party payers.

Operating model

Revenue model
Earned-program. 90% of the money available for current operations came from fees and other program revenue.
Distribution model
Hybrid. The nonprofit split its reported program spending across 63% for direct work, and 37% for grants.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and reported officer compensation is a large share of total spending, which may reflect staffing concentration.

Rating breakdown

  • Financial Efficiency: 70
  • Transparency & Controls: 91
  • Accountability: 86
  • Sustainability: 64
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 70.1%; rating input score 70
  • Program expense ratio: 92.2%; rating input score 92
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 91.7%; rating input score 92; 6th percentile among comparable filings
  • Pay-setting controls: 6 of 6 controls in place; rating input score 100
    • Compensation committee: Pass
    • Independent consultant: Pass
    • Other Form 990s reviewed: Pass
    • Written employment contract: Pass
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 98.5%; rating input score 99; 30th percentile among comparable filings
  • Major donor itemization: Limited
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 66th percentile among comparable filings
  • Governance controls: 6 of 9 controls in place; rating input score 67
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 19%; rating input score 81; 81st percentile among comparable filings
  • Total-asset coverage ratio: 2.95; rating input score 74; 74th percentile among comparable filings
  • Liabilities to assets ratio: 0.5; rating input score 29; 29th percentile among comparable filings
  • Officer compensation ratio: 26%; rating input score 2; 2nd percentile among comparable filings

Growth

  • Program expense growth: 11.4% per year; rating input score 100; 75th percentile among comparable filings
  • Revenue growth: 12.9% per year; rating input score 100; 82nd percentile among comparable filings
  • Asset growth: 24.6% per year; rating input score 100; 93rd percentile among comparable filings

Details

  • Where the money goes: 70.1% of revenue deployed · 92.2% of spending went to programs
  • Governance: 15 of 15 board members independent · 6 of 9 filing controls reported
  • Programs: 1 filed program accomplishment · $8.1M in reported program spending
  • Leadership: top reported pay $447K · 24 people listed · 6 of 6 pay-setting controls reported
  • Highest-paid contractors: 2 contractors listed · $424K reported
  • Consistency: 29 of 30 current checks pass · 1 finding to review
  • Schedules: 7 filed schedules · includes grants and executive pay
  • Filing history: 14 filing years from 2010 to 2024
  • Contacts: How to reach this organization
  • Money network: 16 filed money-flow records
  • Related organizations: 8 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Accountability: Governance controls: 2 of 8 not reported.
  • High — Sustainability: Officer compensation ratio scored 2/100.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
  • High — Sustainability: Liabilities to assets ratio scored 29/100.