World Federation of Hemophilia USA

Nonprofit profile at a glance

EIN
161513923
IRS 990 coverage
2020–2024
Forms available
Form 990 2024
Location
Albany, NY, USA
Phone
8774177944
Rating
87
Verdict
STRONG
Rating confidence
Moderate
Sector
Birth Defects and Genetic Diseases

Official website

Reported finances

Revenue
$1,095,526,264
Expenses
$1,154,898,723
Assets
$377,644,851
Liabilities
$345,276

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

14 people listed

Executive titles in this filing

  • Len Valentino (President)
  • Philip Kucab (Vice-President)

People named in this filing

  • Len Valentino (President)
  • Philip Kucab (Vice-President)
  • Sean Singh (Treasurer)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia WFH within the United States to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All.

What it reported doing in 2024

The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy.The reported $59.37 million deficit is primarily attributable to fluctuations in the value of donated pharmaceutical products which are recorded as in-kind revenue and expense. These are non-cash transactions impacting the total change in net assets without reflecting a change in operating cash flow or program delivery. WFH USA provides tens of thousands of people with hemophilia reliable access to care enabling prophylaxis and elective surgeries in over seventy countries worldwide. Per the Collaboration Agreement with the WFH WFH USA is exclusively responsible for soliciting in-kind contributions of pharmaceutical products and monetary donations for the program. WFH USA periodically grants the received contributions to the WFH as needed to carry out the program.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 100% of its reported program spending out as grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing reports few safeguards for money sent abroad and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 100
  • Transparency & Controls: 75
  • Accountability: 88
  • Sustainability: 32
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 100%; rating input score 100
  • Fundraising efficiency: $18,197.8 raised per $1 spent on fundraising; rating input score 99; 99th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 68th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: 0 of 8 controls in place; rating input score 0
    • Claims monitoring procedures: Limited
    • Requires narrative reports: Limited
    • Conducts field audits: Limited
    • May suspend future funding: Limited
    • Requires financial reports: Limited
    • Conducts site visits: Limited
    • Requires grant agreements: Limited
    • May require repayment: Limited
  • Grant itemization coverage: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 77th percentile among comparable filings
  • Governance controls: 5 of 7 controls in place; rating input score 71
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -5.4%; rating input score 12; 12th percentile among comparable filings
  • Total-asset coverage ratio: 0.33; rating input score 11; 11th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 97; 97th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 98; 98th percentile among comparable filings

Growth

  • Program expense growth: 21.3% per year; rating input score 100; 93rd percentile among comparable filings
  • Revenue growth: 20.6% per year; rating input score 100; 94th percentile among comparable filings
  • Asset growth: 72.4% per year; rating input score 100; 99th percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 100% of spending went to programs
  • Governance: 12 of 12 board members independent · 5 of 7 filing controls reported
  • Programs: 4 filed program accomplishments · $1.2B in reported program spending
  • Leadership: top reported pay $0 · 14 people listed
  • Consistency: 46 of 46 current checks pass
  • Schedules: 7 filed schedules · includes major donors and foreign activity
  • Filing history: 5 filing years from 2020 to 2024
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Transparency & Controls: Foreign activity oversight scored 0/100.
  • Review — Accountability: Governance controls: 2 of 7 not reported.
  • High — Sustainability: Operating margin scored 12/100.
  • High — Sustainability: Total-asset coverage ratio scored 11/100.