Slc6a1 Connect

Nonprofit profile at a glance

EIN
831415567
IRS 990 coverage
2019–2024
Forms available
Form 990 2024
Location
Frisco, TX, USA
Phone
3039078038
Rating
77
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Specifically Named Diseases Research

Official website

Reported finances

Revenue
$716,694
Expenses
$679,506
Assets
$2,404,524
Liabilities
$274,092

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • AMBER FREED (FOUNDER/CEO)
  • KIMBERLY FRY (VICE PRESIDENT)

Highest reported compensation

  • AMBER FREED (FOUNDER/CEO): $99,999 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Slc6a1 connect is a patient advocacy group dedicated to improving the lives of children and families affected by the slc6a1 mutation. Our focus is to raise awareness and fundraising to advance scientific research that will ultimately result in a cure.

What it reported doing in 2024

Slc6a1 connect carried out an international scientific symposium and family conference in december 2024. The international scientific symposium includes a full day of clinical updates, scientific presentations and protocols, the latest research, family testimonials and an engaging panel discussion on clinical trial readiness.

Operating model

Revenue model
Donor-supported. 78% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 56% for direct work, and 44% for grants.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 81
  • Transparency & Controls: 89
  • Accountability: 62
  • Sustainability: 54
  • Growth: 60

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 86.1%; rating input score 86
  • Program expense ratio: 88.3%; rating input score 88
  • Fundraising efficiency: $10.4 raised per $1 spent on fundraising; rating input score 39; 39th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 91.7%; rating input score 92; 12th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 99.2%; rating input score 99; 48th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 87.5%; rating input score 88; 21st percentile among comparable filings
  • Governance controls: 2 of 8 controls in place; rating input score 25
    • Conflict-of-interest policy: Fail
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: Fail
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 5.2%; rating input score 50; 50th percentile among comparable filings
  • Total-asset coverage ratio: 3.54; rating input score 79; 79th percentile among comparable filings
  • Liabilities to assets ratio: 0.11; rating input score 40; 40th percentile among comparable filings
  • Officer compensation ratio: 14.7%; rating input score 24; 24th percentile among comparable filings

Growth

  • Program expense growth: 21.9% per year; rating input score 100; 84th percentile among comparable filings
  • Revenue growth: -21% per year; rating input score 0; 1st percentile among comparable filings
  • Asset growth: 1.4% per year; rating input score 100; 23rd percentile among comparable filings

Details

  • Where the money goes: 86.1% of revenue deployed · 88.3% of spending went to programs
  • Governance: 7 of 8 board members independent · 2 of 8 filing controls reported
  • Programs: 2 filed program accomplishments · $600K in reported program spending
  • Leadership: top reported pay $100K · 8 people listed
  • Consistency: 24 of 25 current checks pass · 1 finding to review
  • Schedules: 6 filed schedules · includes major donors and grants
  • Filing history: 6 filing years from 2019 to 2024
  • Contacts: How to reach this organization
  • Money network: 10 filed money-flow records
  • Related organizations: 7 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Accountability: Governance controls: 5 of 7 not reported.
  • Moderate — Financial Efficiency: Fundraising efficiency scored 39/100.
  • High — Growth: Revenue growth scored 0/100.
  • Review — Sustainability: Operating margin scored 50/100.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
  • High — Sustainability: Officer compensation ratio scored 24/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 40/100.