The American Society of Gene & Cell Therapy

Nonprofit profile at a glance

EIN
911766321
IRS 990 coverage
2015–2024
Forms available
Form 990 2024, Form 990-T 2024
Location
Waukesha, WI, USA
Phone
4142781341
Rating
75
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Birth Defects, Genetic Diseases Research

Official website

Reported finances

Revenue
$16,914,337
Expenses
$14,579,126
Assets
$27,046,811
Liabilities
$6,736,956

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

25 people listed

Executive titles in this filing

  • JEFFREY S CHAMBERLAIN PHD (PAST PRESIDENT)
  • HANS-PETER KIEM MD PHD (PAST PRESIDENT)
  • PAULA CANNON PHD (PRESIDENT)
  • MATTHEW PORTEUS MD PHD (VICE PRESIDENT)
  • TERENCE R FLOTTE MD (PRESIDENT ELECT)
  • DAVID BARRETT (EXECUTIVE DIRECTOR)

Highest reported compensation

  • DAVID BARRETT (EXECUTIVE DIRECTOR): $618,447 total reported compensation
  • MARGARITA LEA VALDEZ (EMPLOYEE): $249,666 total reported compensation
  • LAURA MICHELLE GALLAGHER (EMPLOYEE): $231,223 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Asgct's mission is to advance knowledge, awareness, and education leading to the discovery and clinical application of genetic and cellular therapies to alleviate human disease.

What it reported doing in 2024

Advocacy: advocacy is the third major vehicle for carrying out the educational mission of asgct. The defining value of advocacy is "gene and cell therapy will have a financial impact on patients, providers, and payers. Asgct is committed to understanding that impact and educating decision-makers engaged in developing policies that influence patient access to treatments."

Operating model

Revenue model
Earned-program. 92% of the money available for current operations came from fees and other program revenue.
Distribution model
Direct operator. The filing allocates 89% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and total assets are small relative to annual expenses; liquid coverage is unknown.

Rating breakdown

  • Financial Efficiency: 63
  • Transparency & Controls: 74
  • Accountability: 100
  • Sustainability: 61
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 64.9%; rating input score 65
  • Program expense ratio: 80.1%; rating input score 80
  • Fundraising efficiency: $0.28 raised per $1 spent on fundraising; rating input score 1; 1st percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 62nd percentile among comparable filings
  • Pay-setting controls: 3 of 6 controls in place; rating input score 50
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Pass
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: 2 of 8 controls in place; rating input score 25
    • Claims monitoring procedures: Pass
    • Requires narrative reports: Limited
    • Conducts field audits: Limited
    • May suspend future funding: Limited
    • Requires financial reports: Limited
    • Conducts site visits: Limited
    • Requires grant agreements: Pass
    • May require repayment: Limited
  • Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 66th percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 13.8%; rating input score 75; 75th percentile among comparable filings
  • Total-asset coverage ratio: 1.86; rating input score 59; 59th percentile among comparable filings
  • Liabilities to assets ratio: 0.25; rating input score 52; 52nd percentile among comparable filings
  • Officer compensation ratio: 11.1%; rating input score 16; 16th percentile among comparable filings

Growth

  • Program expense growth: 24.5% per year; rating input score 100; 93rd percentile among comparable filings
  • Revenue growth: 22.1% per year; rating input score 100; 93rd percentile among comparable filings
  • Asset growth: 22.8% per year; rating input score 100; 92nd percentile among comparable filings

Details

  • Where the money goes: 64.9% of revenue deployed · 80.1% of spending went to programs
  • Governance: 15 of 15 board members independent · 8 of 8 filing controls reported
  • Programs: 4 filed program accomplishments · $11.7M in reported program spending
  • Leadership: top reported pay $618K · 25 people listed · 3 of 6 pay-setting controls reported
  • Highest-paid contractors: 1 contractor listed · $216K reported
  • Consistency: 40 of 40 current checks pass
  • Schedules: 7 filed schedules · includes major donors, foreign activity, grants, and executive pay
  • Filing history: 9 filing years from 2015 to 2024
  • Contacts: How to reach this organization
  • Money network: 16 filed money-flow records
  • Related organizations: 10 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Fundraising efficiency scored 1/100.
  • Review — Sustainability: Total-asset coverage ratio scored 59/100.
  • High — Sustainability: Officer compensation ratio scored 16/100.
  • Review — Sustainability: Liabilities to assets ratio scored 52/100.