Living Beyond Breast Cancer
Nonprofit profile at a glance
- EIN
- 232734689
- IRS 990 coverage
- 2010–2025
- Forms available
- Form 990 2025
- Location
- Bala Cynwyd, PA, USA
- Phone
- 6106454567
- Rating
- 83
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Health, General and Financing
Reported finances
- Revenue
- $8,405,482
- Expenses
- $7,760,803
- Assets
- $24,002,422
- Liabilities
- $731,987
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
30 people listed
Executive titles in this filing
- JEAN SACHS MSS MLSP (CHIEF EXECUTIVE OFFICER)
- ASHLEY DEDMAN (VICE PRESIDENT, MISSION DELIVERY)
- FERN GLAZER (VICE PRESIDENT, CONTENT AND COMMUNICATION)
Highest reported compensation
- JEAN SACHS MSS MLSP (CHIEF EXECUTIVE OFFICER): $488,382 total reported compensation
- MONICA STEIGERWALD (VP DEVELOPMENT): $185,710 total reported compensation
- JOANNE BURSICH (VP ADMINISTRATION): $182,224 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Living beyond breast cancer (lbbc) was founded in 1991 and is a national nonprofit organization that seeks to create a world that understands there is more than one way to have breast cancer. To fulfill its mission of providing trusted information and a community of support to those impacted by the disease, lbbc offers on-demand emotional, practical, and evidence-based content. Lbbc addresses the current needs of people affected by breast cancer, whether they are newly diagnosed, in treatment, recovery or living with a history of or managing a metastatic breast cancer. Resources are developed in collaboration with the nation's leading oncologists, health professionals, and allied organizations and are delivered by people who understand the physical and emotional complexities of breast cancer in a variety of ways - in person, printed and digital formats.
What it reported doing in 2025
The no one missed campaign is designed to ensure that patients have access to information about biomarker testing in order to improve doctor-patient dialogue and increase testing. Most of the funds raised for the campaign go to direct costs to implement marketing and advertising efforts. $2,270,000 has been raised for the campaign since its inception. Educational and storytelling website: lbbc.org: the website gathers and presents medical and psychosocial information that people rely on to help them understand their type of breast cancer, the impact it has on their lives and introduces them to the community that is available to support them. The website contains a rich array of resources from written content to videos, to news and views about breast cancer. The website reflects lbbc's commitment to providing information and support to all people impacted by breast cancer, those diagnosed, their families and caregivers as well as healthcare providers. Blogs: lbbc knows there is power in telling personal stories and sharing experiences, for both the writer and the reader. The lbbc blog features stories of people impacted by breast cancer as well as those of family members, friends, and caregivers. These first-person stories, in print and by video, share the lived experience of breast cancer. Reading for reassurance: offers free, age-appropriate books for kids ages 4-17 whose parent has breast cancer. Through this program, children and teens can read their way through stories that mirror their own. Guided by the vision of margaret zuccotti, ms ed., a former elementary school teacher living with metastatic breast cancer, lbbc continues to develop the program to reach more families.
Operating model
- Revenue model
- Donor-supported. 84% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 87% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 78
- Transparency & Controls: 83
- Accountability: 95
- Sustainability: 55
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 80.8%; rating input score 81
- Program expense ratio: 81.9%; rating input score 82
- Fundraising efficiency: $15.56 raised per $1 spent on fundraising; rating input score 51; 51st percentile among comparable filings
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: 3 of 6 controls in place; rating input score 50
- Compensation committee: Pass
- Independent consultant: Missing
- Other Form 990s reviewed: Missing
- Written employment contract: Missing
- Compensation survey or study: Pass
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 75th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 8 of 9 controls in place; rating input score 89
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Fail
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 7.7%; rating input score 50; 50th percentile among comparable filings
- Total-asset coverage ratio: 3.09; rating input score 71; 71st percentile among comparable filings
- Liabilities to assets ratio: 0.03; rating input score 67; 67th percentile among comparable filings
- Officer compensation ratio: 17%; rating input score 19; 19th percentile among comparable filings
Growth
- Program expense growth: 4.1% per year; rating input score 100; 30th percentile among comparable filings
- Revenue growth: 4.4% per year; rating input score 100; 33rd percentile among comparable filings
- Asset growth: 8.5% per year; rating input score 100; 52nd percentile among comparable filings
Details
- Where the money goes: 80.8% of revenue deployed · 81.9% of spending went to programs
- Governance: 24 of 24 board members independent · 8 of 9 filing controls reported
- Programs: 4 filed program accomplishments · $6.4M in reported program spending
- Leadership: top reported pay $488K · 30 people listed · 3 of 6 pay-setting controls reported
- Highest-paid contractors: 4 contractors listed · $652K reported
- Consistency: 39 of 39 current checks pass
- Schedules: 8 filed schedules · includes major donors, grants, and executive pay
- Filing history: 16 filing years from 2010 to 2025
- Contacts: How to reach this organization
- Money network: 10 filed money-flow records
- Related organizations: 4 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Fundraising efficiency scored 51/100.
- Review — Sustainability: Operating margin scored 50/100.
- Review — Accountability: Governance controls: Other executive compensation review process not reported.
- High — Sustainability: Officer compensation ratio scored 19/100.