Metavivor Research and Support Inc

Nonprofit profile at a glance

EIN
371578088
IRS 990 coverage
2013–2024
Forms available
Form 990 2024
Location
Middleton, WI, USA
Phone
8188601226
Rating
83
Verdict
STRONG
Rating confidence
Moderate
Sector
Public Health Program (Includes General Health and Wellness Promotion Services)

Reported finances

Revenue
$5,896,911
Expenses
$4,477,421
Assets
$17,897,667
Liabilities
$13,981,126

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

17 people listed

Executive titles in this filing

  • JAMIL RIVERS (PRESIDENT)
  • KATE WATSON (VICE PRESIDENT)
  • CJ DIAN CORNELIUSSEN-JAMES (IMMEDIATE PAST PRESIDENT)
  • SONYA NEGLEY (EXECUTIVE DIRECTOR (THRU OCT 2024))
  • CRYSTAL MOORE (EXECUTIVE DIRECTOR (FROM NOV 2024))

Highest reported compensation

  • SONYA NEGLEY (EXECUTIVE DIRECTOR (THRU OCT 2024)): $199,367 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To fund stage iv metastatic breast cancer mbc research to transition the disease from terminal to chronic yet manageable with a good quality of life, provide support and education for patients living with mbc and promote awareness of mbc to increase research funding.

What it reported doing in 2024

This year metavivor awarded or paid stage iv metastatic breast cancer research grants to Virginia commonwealth university, national cancer institute, university of pittsburgh, icahn school of medicine, university of Minnesota, university of Alabama, boston medical center, cedars sinai, university of Colorado, dartmouth college, health research institute, univeristy of utahhuntsman, university of Virginia, wake forest university, state university of New York, university of Maryland, university of Kansas, New Mexico school of medicine, university of notre dame, rutgers state university, stanford university, and university of Washington. This year metavivor worked on patient advocacy issues and continued its nationwide peer support leader training program. We developed new website capabilities to provide online resources to support these programs and to support our research grant application process.

Operating model

Revenue model
Donor-supported. 87% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 92% of its reported program spending out as grants.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and liabilities are high compared with assets.

Rating breakdown

  • Financial Efficiency: 80
  • Transparency & Controls: 83
  • Accountability: 90
  • Sustainability: 69
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 73.7%; rating input score 74
  • Program expense ratio: 91.5%; rating input score 91
  • Fundraising efficiency: $36.69 raised per $1 spent on fundraising; rating input score 73; 73rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 3 of 6 controls in place; rating input score 50
    • Compensation committee: Missing
    • Independent consultant: Pass
    • Other Form 990s reviewed: Missing
    • Written employment contract: Pass
    • Compensation survey or study: Missing
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 6 of 8 controls in place; rating input score 75
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 24.1%; rating input score 80; 80th percentile among comparable filings
  • Total-asset coverage ratio: 4; rating input score 80; 80th percentile among comparable filings
  • Liabilities to assets ratio: 0.78; rating input score 11; 11th percentile among comparable filings
  • Officer compensation ratio: 4.5%; rating input score 58; 58th percentile among comparable filings

Growth

  • Program expense growth: 16.7% per year; rating input score 100; 81st percentile among comparable filings
  • Revenue growth: 16.1% per year; rating input score 100; 83rd percentile among comparable filings
  • Asset growth: 21.2% per year; rating input score 100; 85th percentile among comparable filings

Details

  • Where the money goes: 73.7% of revenue deployed · 91.5% of spending went to programs
  • Governance: 15 of 15 board members independent · 6 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $4.1M in reported program spending
  • Leadership: top reported pay $199K · 17 people listed · 3 of 6 pay-setting controls reported
  • Consistency: 33 of 33 current checks pass
  • Schedules: 7 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 12 filing years from 2013 to 2024
  • Contacts: How to reach this organization
  • Money network: 12 filed money-flow records
  • Related organizations: 11 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Accountability: Governance controls: Independent financial-statement audit not reported.
  • High — Sustainability: Liabilities to assets ratio scored 11/100.
  • Review — Sustainability: Officer compensation ratio scored 58/100.