Glioblastoma Research Organization Inc

Nonprofit profile at a glance

EIN
832388861
IRS 990 coverage
2022–2025
Forms available
Form 990 2025, Form 990-EZ 2021
Location
Miami, FL, USA
Phone
3059848164
Rating
69
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Fund Raising and Fund Distribution

Official website

Reported finances

Revenue
$1,804,767
Expenses
$1,112,732
Assets
$1,432,059
Liabilities
$36,353

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

6 people listed

Executive titles in this filing

  • AMBER BARBACH (FOUNDER AND EXECUTIVE DIRECTOR)
  • ELISSA BARBACH (VICE PRESIDENT)

Highest reported compensation

  • AMBER BARBACH (FOUNDER AND EXECUTIVE DIRECTOR): $108,429 total reported compensation
  • AZUL M DIEZ (DEVELOPMENT DIRECTOR): $104,792 total reported compensation
  • ELISSA BARBACH (VICE PRESIDENT): $19,264 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Glioblastoma research organization, inc. Is a 501(c)(3) nonprofit organization that raises awareness and funds for new global, cutting-edge research to help find a cure for glioblastoma.

What it reported doing in 2025

See schedule o for detail.the organization to date, has provided support to doctors and researchers through sixteen fully funded projects at leading cancer centers. The organization also donated over $675,000 in the last few years and has partnered with gbm-related projects around the globe. The organization has the opportunity to meet with leaders in neuro-oncology as well as connect with the people and families directly impacted by glioblastoma. The stories behind this deadly cancer drive our research funding mission. Fueled by our founder's personal experience with gbm, the glioblastoma research organization's communications channels, such as social media, serve as a bridge to connect those all over the world who are suffering from glioblastoma or have been affected by the disease. The organization provides a hub for communication where people in the same situation can share their experiences.

Operating model

Revenue model
Donor-supported. 98% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 78% for direct work, and 22% for grants.

The verdict

SUPPORTED - The filed numbers largely add up and most filed governance safeguards are in place. A relatively small share of available resources goes toward mission work and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 58
  • Transparency & Controls: 74
  • Accountability: 77
  • Sustainability: 63
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 49.3%; rating input score 49
  • Program expense ratio: 78.6%; rating input score 79
  • Fundraising efficiency: $13.04 raised per $1 spent on fundraising; rating input score 43; 43rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 93.8%; rating input score 94; 25th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: 1 of 8 controls in place; rating input score 12
    • Claims monitoring procedures: Pass
    • Requires narrative reports: Limited
    • Conducts field audits: Limited
    • May suspend future funding: Limited
    • Requires financial reports: Limited
    • Conducts site visits: Limited
    • Requires grant agreements: Limited
    • May require repayment: Limited
  • Grant itemization coverage: 98.7%; rating input score 99; 51st percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 60%; rating input score 60; 16th percentile among comparable filings
  • Governance controls: 8 of 8 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: 38.3%; rating input score 86; 86th percentile among comparable filings
  • Total-asset coverage ratio: 1.29; rating input score 51; 51st percentile among comparable filings
  • Liabilities to assets ratio: 0.03; rating input score 51; 51st percentile among comparable filings
  • Officer compensation ratio: 20.9%; rating input score 15; 15th percentile among comparable filings

Growth

  • Program expense growth: 55.4% per year; rating input score 100; 96th percentile among comparable filings
  • Revenue growth: 46.1% per year; rating input score 100; 95th percentile among comparable filings
  • Asset growth: 52% per year; rating input score 100; 95th percentile among comparable filings

Details

  • Where the money goes: 49.3% of revenue deployed · 78.6% of spending went to programs
  • Governance: 3 of 5 board members independent · 8 of 8 filing controls reported
  • Programs: 2 filed program accomplishments · $875K in reported program spending
  • Leadership: top reported pay $108K · 6 people listed
  • Consistency: 33 of 34 current checks pass · 1 finding to review
  • Schedules: 6 filed schedules · includes major donors, foreign activity, and grants
  • Filing history: 4 filing years from 2022 to 2025
  • Contacts: How to reach this organization
  • Money network: 9 filed money-flow records
  • Related organizations: 4 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 49/100.
  • Moderate — Financial Efficiency: Fundraising efficiency scored 43/100.
  • Review — Sustainability: Total-asset coverage ratio scored 51/100.
  • High — Sustainability: Officer compensation ratio scored 15/100.
  • Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
  • Review — Sustainability: Liabilities to assets ratio scored 51/100.