Curepsp Inc

What it reported doing in 2024

Curepsp publishes a library of printed and online educational materials for families, patients, physicians, and other healthcare professionals. These materials are developed in collaboration with curepsp centers of care, a network of hospitals and best-in-class academic centers specializing in treating patients with psp, cbd, and msa. Curepsp sponsors educational conferences in collaboration with leading institutions to increase knowledge and support people living with these fatal diseases. The objective is to promote education, earlier and more accurate diagnosis and better patient care. Several dozen volunteer events annually, supported by curepsp, further educate, and empower our community to prepare for their care needs. (continue on schedule o)curepsp utilizes social media, online platforms, and educational programming to communicate with and support patients, care partners, and healthcare professionals. The organization maintains an online patient and caregiver forum, produces national webinars and educational presentations from clinicians and researchers, and hosts "ask the experts" interactive sessions. Curepsp also organizes online support groups, annual wellness workshops, and an in-person community gathering to help individuals manage disease burden and the challenges of caregiving. Through the curepsp quality of life respite grant program, supported by the cherie levien quality of life fund and other donors, the organization provides financial assistance to help families access professional in-home care. Curepsp supports more than 50 virtual and in-person support groups and leverages a global network of more than 350 volunteers to provide online, telephone, and face-to-face support.curepsp established the curepsp centers of care network in 2017 to improve access to high-quality, specialized clinical care. Medical centers are designated based on criteria including expertise in diagnosis and management, availability of multidisciplinary care and support services, and participation in clinical research. Through this network, curepsp collaborates with leading medical centers to promote earlier diagnosis, advance best practices in care, expand access to specialized services, and support clinical research. The network now includes centers in the united states and canada, with additional centers planned in europe.

Financial Efficiency

• Mission deployment rate: 62%; rating input score 62
• Program expense ratio: 81%; rating input score 81
• Fundraising efficiency: $14.47 raised per $1 spent on fundraising; rating input score 50; 50th percentile among comparable filings

Transparency & Controls

• Consistency checks: 94.4%; rating input score 94; 24th percentile among comparable filings
• Pay-setting controls: 1 of 6 controls in place; rating input score 17
  • Compensation committee: Missing
  • Independent consultant: Missing
  • Other Form 990s reviewed: Missing
  • Written employment contract: Missing
  • Compensation survey or study: Missing
  • Board or committee approval: Pass
• Foreign activity oversight: 3 of 8 controls in place; rating input score 38
  • Claims monitoring procedures: Pass
  • Requires narrative reports: Pass
  • Conducts field audits: Fail
  • May suspend future funding: Fail
  • Requires financial reports: Pass
  • Conducts site visits: Fail
  • Requires grant agreements: Fail
  • May require repayment: Fail
• Grant itemization coverage: 94.1%; rating input score 94; 29th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
• Governance controls: 6 of 9 controls in place; rating input score 67
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Fail
  • Document-retention policy: Fail
  • CEO compensation review process: Pass
  • Other executive compensation review process: Fail
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 25.8%; rating input score 82; 82nd percentile among comparable filings
• Total-asset coverage ratio: 1.88; rating input score 60; 60th percentile among comparable filings
• Liabilities to assets ratio: 0.1; rating input score 58; 58th percentile among comparable filings
• Officer compensation ratio: 13.3%; rating input score 22; 22nd percentile among comparable filings

Growth

• Program expense growth: 7.6% per year; rating input score 100; 54th percentile among comparable filings
• Revenue growth: 7.7% per year; rating input score 100; 58th percentile among comparable filings
• Asset growth: 11.3% per year; rating input score 100; 63rd percentile among comparable filings