World Patients Alliance

What it reported doing in 2024

Advocacy: the wpa plays a pivotal role in the global policy arena, representing patients worldwide. It dedicates substantial effort to conveying the patient perspective to regulators, policymakers, and key stakeholders, including the who, eu, and other governing bodies. To ensure the patient voice is effectively heard, wpa actively participates and presents at numerous international meetings. Below is a selection of events where wpa board directors and advisory board members were present, either virtually or in person: a.6th global ministerial summit on patient safety, santiago b.axios international, duphat 2024 healthcare conference, dubai c.european conference of hygiene and epidemiology, wisla, poland d.isqua's person and family centered advisory council (pfcac) meeting e.axios international, patient voice conference, dubai f.european patient safety foundation conference g.dia 2024, global annual meeting in san diego, ca h.conference of drug regulatory authorities (icdra) and its pre-icdra, india i.parenteral drug association (pda) good aseptic manufacturing conference, stuttgart j.growth direct day conference, maastricht, netherlands k.international pharmaceutical federation (fip) digital event l.gscf: united for self-care coalition m.whoa patient and community engagement working group meetings n.who civil society commission wg1 webinar on avian influenza h5 o.who world patient safety day (wpsd) 2024 global consultation p.wfpha ngos for equity online meeting q.spsc wpsd webinar: "getting patients the right diagnosis at the right time" r.who climate change webinar s.boehringer ingelheim pulse 2 & patient-centric summit 2024 t.world medical association conference in munich, germany u.2nd international symposium on patient safety and quality whenever possible, the wpa's travel expenses are covered by partner coalitions, reducing the organization's financial burden. In 2024, the wpa concentrated on advocacy, highlighted by the success of the world patient safety day 2024, patient safety books for children and heart of healthcare celebrating our nurses' campaigns. It collaborated with its members to organize awareness events, addressing critical patient issues through social media, print, and electronic media, reaching out to wpa members and the global patient community. The wpa successfully hosted its 2nd world patients conference in cape town, south africa, on october 19-20, 2024, under the theme "the role of the patient in a changing world." the hybrid event brought together over 1,000 participants from 124 countries, including international patient advocates, healthcare leaders, and global organizations such as the who, wma, icn, ihf, wfpha, auda-nepad, and jci. The conference served as a global platform to advance patient-centered healthcare, featuring sessions on access to healthcare, regulatory engagement, self-care, ai in health, patient safety, and the launch of patient safety books for children. It concluded with a renewed commitment to strengthen patient engagement and embed patient- centeredness in health policies and practices worldwide. To further raise awareness within the patient community, wpa released a video on how do you raise concerns about a patient's condition in the hospital? And how do you know you are getting the right diagnosis? Additionally, webinars on key topics identified in the 2023 membership survey were held. Below is a list of the global webinars organized by wpa in 2024: a.capacity building for patient advocacy groups: introducing the patient advocacy and leadership collective - from concept to launch b.self-care c.the deteriorating patient: when a hospital patient unexpectedly goes downhill, what can families do? D.mindful living: ncd prevention in europe e.challenges in implementing patient- and family-centered healthcare f.understanding and managing pain g.diagnosis: get it right, make it safe h.heart of healthcare: celebrating our nurses i.a dialogue on how to spark clinical trial and pol

Financial Efficiency

• Mission deployment rate: 65.8%; rating input score 66
• Program expense ratio: 79.7%; rating input score 80
• Fundraising efficiency: Limited

Transparency & Controls

• Consistency checks: 90%; rating input score 90; 9th percentile among comparable filings
• Pay-setting controls: Limited
• Foreign activity oversight: 2 of 8 controls in place; rating input score 25
  • Claims monitoring procedures: Pass
  • Requires narrative reports: Fail
  • Conducts field audits: Fail
  • May suspend future funding: Fail
  • Requires financial reports: Fail
  • Conducts site visits: Fail
  • Requires grant agreements: Pass
  • May require repayment: Fail
• Grant itemization coverage: 0%; rating input score 0; 19th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
• Governance controls: 2 of 8 controls in place; rating input score 25
  • Conflict-of-interest policy: Fail
  • Whistleblower policy: Fail
  • Document-retention policy: Fail
  • CEO compensation review process: NotApplicable
  • Other executive compensation review process: Fail
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Missing
  • Independent financial-statement audit: Fail

Sustainability

• Operating margin: 18.3%; rating input score 72; 72nd percentile among comparable filings
• Total-asset coverage ratio: 1.45; rating input score 51; 51st percentile among comparable filings
• Liabilities to assets ratio: 0; rating input score 80; 80th percentile among comparable filings
• Officer compensation ratio: 32.2%; rating input score 10; 10th percentile among comparable filings

Growth

• Program expense growth: 31.6% per year; rating input score 100; 91st percentile among comparable filings
• Revenue growth: 19.8% per year; rating input score 100; 87th percentile among comparable filings
• Asset growth: 27.7% per year; rating input score 100; 90th percentile among comparable filings