Williams Syndrome Charitable Foundation USA Inc

Nonprofit profile at a glance

EIN
813278513
IRS 990-EZ coverage
2017–2024
Forms available
Form 990 2018, Form 990-EZ 2024
Location
Greenwich, CT, USA
Phone
2035178407
Rating confidence
Limited
Sector
Community Foundations

Reported finances

Revenue
$9,049
Expenses
$27,675
Assets
$4,701

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

3 people listed

People named in this filing

  • DOUG CONROD (PRES/DIR)
  • DANIEL TAYLOR (TREAS/DIR)
  • MALCOLM KOSTUCHENKO (SEC/DIR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

There are roughly 30,000 people in the United States living with Williams Syndrome. Williams Syndrome is characterized by the deletion of approximately 27 genes on the 7th chromosome. Those with Williams experience significant cardiovascular problems and many other health related problems, developmental delays, and learning disabilities. In 2009 The Conrod family began hosting the George Cup to raise awareness and funding for Williams medical research and education. Now run by the Williams Syndrome Charitable Foundation, the occasional Golf event and Dinner is how the Organization raises the bulk of the funds to provide this support.

What it reported doing in 2024

The Organization holds an occasional golf outing & dinner in which all net proceeds are donated to aid in Williams Syndrome support services & research. There was no event held in 2023. The golf outing fundraiser will again be held in the near future but the Organization did hold a small fundraiser in 2022 that resulted in $8000 of revenue in 2022 & with additional amounts received in 2023During 2023 the Organization funded the cost of a Williams Syndrome educational consultant who trains teachers in the Greenwich CT school system to help make school technologies user friendly for students with Williams Syndrome.

Operating model

Revenue model
Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
Distribution model
Cannot be determined from the filing. The filing does not provide enough consistent spending detail to tell whether the nonprofit works directly or through others.

The verdict

- The available evidence is not sufficient to produce an overall rating for this filing. This is not a warning sign.

Rating breakdown

  • Financial Efficiency: NotEnoughData
  • Transparency & Controls: 82
  • Sustainability: 13
  • Growth: 0

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: Limited
  • Program expense ratio: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: -205.8%; rating input score 5; 5th percentile among comparable filings
  • Total-asset coverage ratio: 0.17; rating input score 15; 15th percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: -16.8% per year; rating input score 0; 20th percentile among comparable filings
  • Revenue growth: -31.3% per year; rating input score 0; 10th percentile among comparable filings
  • Asset growth: -20.8% per year; rating input score 0; 10th percentile among comparable filings

Details

  • Where the money goes: Financial trends and filed revenue, expense, asset, and liability detail
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment
  • Leadership: top reported pay $0 · 3 people listed
  • Consistency: 6 of 6 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 6 filing years from 2017 to 2024
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Sustainability: Operating margin scored 5/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Sustainability: Total-asset coverage ratio scored 15/100.
  • High — Growth: Asset growth scored 0/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.