Wescoe Foundation for Pulmonary Fibrosis

Nonprofit profile at a glance

EIN
274464618
IRS 990 coverage
2020–2024
Forms available
Form 990 2024, Form 990-N 2015
Location
Coopersburg, PA, USA
Phone
4845536340
Rating
78
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Fund Raising and/or Fund Distribution

Official website

Reported finances

Revenue
$167,922
Expenses
$177,575
Assets
$5,674
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • JENNIFER WESCOE SINGLEY (EXECUTIVE DIRECTOR)
  • TRISHA COLASURDO (VICE PRESIDENT)
  • GERARD PETERSEN (PRESIDENT)

Highest reported compensation

  • JENNIFER WESCOE SINGLEY (EXECUTIVE DIRECTOR): $45,000 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The wescoe foundation for pulmonary fibrosis provides support, education, advocacy and resources for patients living with idiopathic pulmonary fibrosis (ipf), their families and care partners in order to sustain the highest possible quality of life.

What it reported doing in 2024

Support groups and patient & care partner education: through our support groups, the wescoe foundation for pulmonary fibrosis connects patients, care partners, and families to essential education, support, and resources while navigating pulmonary fibrosis. We have evolved from one support group in the lehigh valley, Pennsylvania area to 19 support groups in Pennsylvania, New Jersey, and Delaware. The scope of our outreach has extended from regional efforts to national and global recognition within the pulmonary fibrosis community. Our virtual platform has allowed us to maintain consistent participation and accessibility, ensuring that patients and families, regardless of geographic location, remain connected and supported. These meetings foster meaningful peer connections, provide access to leading pulmonary specialists, and educate participants with current information on disease management, clinical trials, and improving one's quality of life. To grow and develop our programming, our collaborative efforts with major medical centers, area community hospitals, and clinical and academic institutions remain strong, with patient and community engagement. We have expanded our groups to prioritize care partner support, lung transplant education, and overall mental health. Additionally, our support groups have been expanded to further support to include women, veterans, and grief groups.in addition to our support group network, the wescoe foundation has developed a comprehensive patient education program designed to educate individuals and their families through the progression of the disease. The pulmonary fibrosis podcast features expert interviews with pulmonologists, transplant specialists, mental health professionals, and patients & care partners, offering accessible, real-world insights into living well with pulmonary fibrosis. The quarterly educational lecture series brings together leading clinicians and researchers to discuss topics such as symptom management, pulmonary rehabilitation, clinical trials, and lung transplantation, providing participants with up-to-date, evidence-based knowledge. Lastly, we distribute patient carebooks, a foundational resource developed to help individuals and care partners navigate their diagnosis, treatment options, and self-advocacy within the healthcare system. These materials complement our virtual programs and help ensure that education continues beyond the meeting setting.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 76
  • Transparency & Controls: 92
  • Accountability: 84
  • Sustainability: 25
  • Growth: 40

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 81.3%; rating input score 81
  • Program expense ratio: 76.9%; rating input score 77
  • Fundraising efficiency: $14.16 raised per $1 spent on fundraising; rating input score 49; 49th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 5 of 8 controls in place; rating input score 62
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Fail
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Fail
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: -5.7%; rating input score 28; 28th percentile among comparable filings
  • Total-asset coverage ratio: 0.03; rating input score 3; 3rd percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 80; 80th percentile among comparable filings
  • Officer compensation ratio: 25.3%; rating input score 14; 14th percentile among comparable filings

Growth

  • Program expense growth: 14% per year; rating input score 100; 77th percentile among comparable filings
  • Revenue growth: -3% per year; rating input score 0; 14th percentile among comparable filings
  • Asset growth: -76.4% per year; rating input score 0; 1st percentile among comparable filings

Details

  • Where the money goes: 81.3% of revenue deployed · 76.9% of spending went to programs
  • Governance: 6 of 6 board members independent · 5 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $137K in reported program spending
  • Leadership: top reported pay $45K · 8 people listed
  • Consistency: 26 of 26 current checks pass
  • Schedules: 5 filed schedules · includes major donors
  • Filing history: 4 filing years from 2020 to 2024
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Accountability: Governance controls: 3 of 8 not reported.
  • Moderate — Financial Efficiency: Fundraising efficiency scored 49/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Sustainability: Operating margin scored 28/100.
  • High — Sustainability: Total-asset coverage ratio scored 3/100.
  • High — Growth: Asset growth scored 0/100.
  • High — Sustainability: Officer compensation ratio scored 14/100.