Vitiligo Support International Inc

Nonprofit profile at a glance

EIN
371731960
IRS 990-EZ coverage
2020–2025
Forms available
Form 990-EZ 2025
Location
Lynchburg, VA, USA
Phone
4343265380
Rating
66
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Diseases of Specific Organs

Official website

Reported finances

Revenue
$106,574
Expenses
$58,403
Assets
$328,921
Liabilities
$13,606

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

4 people listed

Executive titles in this filing

  • Jacquelyn Gardner (Executive Director)

People named in this filing

  • Jennifer Polk (Director)
  • Polly King (Director)
  • Jacquelyn Gardner (Executive Director)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Vitiligo Support International, Inc. (VSI) is a community organization, committed to supporting those with vitiligo by providing current information; raising awareness; promoting research, improved clinical care and treatments; and working towards comprehensive insurance coverage, until a cure is found.

What it reported doing in 2025

VSI is a patient-driven organization, offering the broadest level of personal, educational, and emotional support to the vitiligo community. It responds annually to thousands of inquiries received by telephone, letter, email, and through its member forums and social media. VSI is committed to meet these requests by providing unbiased, current, accurate, and relevant information to patients, family, friends, physicians, and media. VSI has over 60,000 registered members and connects annually with over a million website visitors from 200+ countries. VSI's quarterly e-newsletters are the only patient resource of its kind. Each edition delivers the most current information available to our worldwide circulation of around 35,000 subscribers. In addition, VSI promotes congressional and public awareness of the need for increased funding for vitiligo research and better access to treatments. It partners with primary skin disease research and patient organizations to connect with healthcare providers, researchers, and public policy leaders. As a patient organization member of a collaboration of leading clinicians and researchers dedicated to the development of a funding stream for vitiligo research, a better understanding of the patients' point of view, and improvement of the quality of life for those affected by vitiligo, VSI represents the patients' perspective so that patients have a voice in improving clinical care and research guidelines. VSI also routinely assists scientists and clinicians with their recruitment efforts for clinical trials, surveys, and studies by publishing notices in its newsletters, website, and social media. It also serves in an advisory capacity to industry seeking to understand the needs and perspective of the vitiligo community.

Operating model

Revenue model
Donor-supported. 70% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and program spending has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 54
  • Transparency & Controls: 82
  • Sustainability: 74
  • Growth: 60

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 41.1%; rating input score 41
  • Program expense ratio: 74.9%; rating input score 75

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: 45.2%; rating input score 90; 90th percentile among comparable filings
  • Total-asset coverage ratio: 5.63; rating input score 96; 96th percentile among comparable filings
  • Liabilities to assets ratio: 0.04; rating input score 27; 27th percentile among comparable filings
  • Officer compensation ratio: 71.1%; rating input score 1; 1st percentile among comparable filings

Growth

  • Program expense growth: -4.9% per year; rating input score 0; 20th percentile among comparable filings
  • Revenue growth: 0.5% per year; rating input score 100; 21st percentile among comparable filings
  • Asset growth: 8.3% per year; rating input score 100; 54th percentile among comparable filings

Details

  • Where the money goes: 41.1% of revenue deployed · 74.9% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment · $44K in reported program spending
  • Leadership: top reported pay $0 · 4 people listed
  • Consistency: 9 of 9 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 6 filing years from 2020 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 41/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Sustainability: Officer compensation ratio scored 1/100.
  • High — Sustainability: Liabilities to assets ratio scored 27/100.