Usagainstalzheimer's Action

What it reported doing in 2025

Since our founding in 2010, usagainstalzheimer's action has worked with people and organizations across sectors to achieve milestones, including:-advocating for family caregivers by supporting the bipartisan credit for caregiving act, introduced in congress to provide up to $5,000 in federal tax relief for caregiving expenses such as home safety modifications, transportation, and respite care. -joining almost 50 patient advocacy organizations in calling for an immediate halt to federal funding and staffing cuts that threaten progress in alzheimer's and dementia prevention, research, care, and treatment. The coalition warned that reductions across key health agencies could undermine decades (continued on schedule o)of bipartisan investment and slow advances that millions of patients and families depend on. Policymakers were pressed to engage patients, caregivers, researchers, and advocates before implementing further cuts that could jeopardize public health and scientific progress.-supporting bipartisan reintroduction of the concentrating on high-value alzheimer's needs to get to an end (change) act, a major step toward improving early detection, diagnosis, and treatment of alzheimer's disease and related dementias. -advocating to protect medicaid as a critical lifeline for people with alzheimer's and related dementias, warning that proposed restrictions could limit access to essential long-term care for millions. The organization has urged congress through public statements and direct engagement to preserve and strengthen medicaid and ensure equitable access to care for aging americans.-increasing federal investment in alzheimer's research. Usagainstalzheimer's action played a key role in helping hold the budget for ad/adrd research steady at the national institutes of health (nih) in calendar year 2025. As a respected advocate, usagainstalzheimer's action has helped drive increases in nih ad/adrd spending from $968 million a decade earlier to nearly $3.8 billion in 2025.

Financial Efficiency

• Mission deployment rate: 68.8%; rating input score 69
• Program expense ratio: 98.5%; rating input score 99
• Fundraising efficiency: $218.41 raised per $1 spent on fundraising; rating input score 90; 90th percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
• Pay-setting controls: Limited
• Foreign activity oversight: Limited
• Grant itemization coverage: Limited
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
• Governance controls: 7 of 7 controls in place; rating input score 100
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: NotApplicable
  • Other executive compensation review process: NotApplicable
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Pass
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 30.3%; rating input score 84; 84th percentile among comparable filings
• Total-asset coverage ratio: 0.49; rating input score 12; 12th percentile among comparable filings
• Liabilities to assets ratio: 0.03; rating input score 82; 82nd percentile among comparable filings
• Officer compensation ratio: 0%; rating input score 96; 96th percentile among comparable filings

Growth

• Program expense growth: 32.3% per year; rating input score 100; 94th percentile among comparable filings
• Revenue growth: 34.5% per year; rating input score 100; 97th percentile among comparable filings
• Asset growth: 41.2% per year; rating input score 100; 98th percentile among comparable filings