USA Aniridia Network Dba Aniridia Foundation International
Nonprofit profile at a glance
- EIN
- 043599174
- IRS 990-EZ coverage
- 2015–2025
- Forms available
- Form 990 2014, Form 990-EZ 2025, Form 990-N 2013
- Location
- Cordova, TN, USA
- Phone
- 9014091600
- Rating
- 78
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Health Support Services
Reported finances
- Revenue
- $51,240
- Expenses
- $120,464
- Assets
- $131,255
- Liabilities
- $1,723
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
3 people listed
People named in this filing
- JILL A NERBY (DIRECTOR)
- MICHAEL MARRAZZO (CHAIR)
- MICHAEL TALLEY (OFFICER & CH)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To provide education, peer support, consulting, and programs/services for individuals and families affected by aniridia syndrome, a rare genetic disorder caused by a mutation in the pax6 gene. This condition results in low vision or blindness and is often associated with complex, lifelong medical challenges, including childhood glaucoma, cataracts, retinal disease, corneal complications due to limbal stem cell deficiency (lscd), metabolic disorders, a rare form of monogenic diabetes and neurological conditions. Because aniridia syndrome is degenerative and has no known cure, the organization is dedicated to improving quality of life by advancing knowledge, supporting affected individuals and families, and contributing to research efforts aimed at developing treatments and, ultimately, a cure.
What it reported doing in 2025
The organization provides education and support to individuals and families affected by aniridia syndrome. Resources include an informational website, educational materials, and the book publication "aniridia and wagr syndrome: a guide for patients and their families." the organization also facilitates connections between affected individuals and families for shared learning and support. Emotional support and peer consulting are central to the mission. Services include mentorship and guidance for parents of newly diagnosed children, as well as support for individuals navigating education, employment, and independent living with visual impairment. Volunteers provide career- related mentoring according to their expertise in the area. Financial support assistance is available for individuals in need through the chris albrecht hope (helping other people) fund, which supports medical, non-medical, and mental health-related expenses based on demonstrated need via application.
Operating model
- Revenue model
- Donor-supported. 89% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 97% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. A relatively small share of total spending goes to programs and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 79
- Transparency & Controls: 82
- Sustainability: 21
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 44.9%; rating input score 45
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: -135.1%; rating input score 6; 6th percentile among comparable filings
- Total-asset coverage ratio: 1.09; rating input score 50; 50th percentile among comparable filings
- Liabilities to assets ratio: 0.01; rating input score 24; 24th percentile among comparable filings
- Officer compensation ratio: 66.4%; rating input score 2; 2nd percentile among comparable filings
Growth
- Program expense growth: 6.6% per year; rating input score 100; 64th percentile among comparable filings
- Revenue growth: 0.8% per year; rating input score 100; 53rd percentile among comparable filings
- Asset growth: 5.1% per year; rating input score 100; 57th percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 44.9% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 3 filed program accomplishments · $54K in reported program spending
- Leadership: top reported pay $0 · 3 people listed
- Consistency: 9 of 9 current checks pass
- Schedules: 2 filed schedules
- Filing history: 11 filing years from 2015 to 2025
- Contacts: How to reach this organization
- Money network: 2 filed money-flow records
- Related organizations: 1 filed related-organization link
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Program expense ratio scored 45/100.
- High — Sustainability: Operating margin scored 6/100.
- Review — Sustainability: Total-asset coverage ratio scored 50/100.
- High — Sustainability: Officer compensation ratio scored 2/100.
- High — Sustainability: Liabilities to assets ratio scored 24/100.