United Mitochondrial Disease Foundation Inc
Nonprofit profile at a glance
- EIN
- 251767180
- IRS 990 coverage
- 2009–2024
- Forms available
- Form 990 2024
- Location
- Pittsburgh, PA, USA
- Phone
- 4127938077
- Rating
- 71
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Specifically Named Diseases
Reported finances
- Revenue
- $4,062,127
- Expenses
- $4,404,370
- Assets
- $6,646,958
- Liabilities
- $2,517,767
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
19 people listed
Executive titles in this filing
- BRIAN HARMON (PRESIDENT & CEO THRU 7/24)
- KRISTEN CLIFFORD (PRESIDENT & CEO BEG 1/25)
Highest reported compensation
- PHIL YESKE (SCIENCE & ALLIANCE OFFICER): $233,249 total reported compensation
- BRIAN HARMON (PRESIDENT & CEO THRU 7/24): $168,077 total reported compensation
- MARIA PORTO (DIRECTOR FINANCE & OPERATIONS): $132,135 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.
What it reported doing in 2024
Funded research for cures and treatments of mitochondrial disorders.
Operating model
- Revenue model
- Donor-supported. 77% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 66% for direct work, and 34% for grants.
- Includes noncash contributions: Reported contributions include donated property or goods.
The verdict
SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. The filing reports few safeguards for money sent abroad and fundraising costs are high for each dollar raised.
Rating breakdown
- Financial Efficiency: 67
- Transparency & Controls: 66
- Accountability: 91
- Sustainability: 28
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 75.3%; rating input score 75
- Program expense ratio: 68.7%; rating input score 69
- Fundraising efficiency: $5.96 raised per $1 spent on fundraising; rating input score 22; 22nd percentile among comparable filings
Transparency & Controls
- Consistency checks: 94.1%; rating input score 94; 23rd percentile among comparable filings
- Pay-setting controls: 2 of 6 controls in place; rating input score 33
- Compensation committee: Missing
- Independent consultant: Missing
- Other Form 990s reviewed: Missing
- Written employment contract: Pass
- Compensation survey or study: Missing
- Board or committee approval: Pass
- Foreign activity oversight: 1 of 8 controls in place; rating input score 12
- Claims monitoring procedures: Pass
- Requires narrative reports: Fail
- Conducts field audits: Fail
- May suspend future funding: Fail
- Requires financial reports: Fail
- Conducts site visits: Fail
- Requires grant agreements: Fail
- May require repayment: Fail
- Grant itemization coverage: 95.6%; rating input score 96; 30th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 7 of 9 controls in place; rating input score 78
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: -8.4%; rating input score 15; 15th percentile among comparable filings
- Total-asset coverage ratio: 1.51; rating input score 52; 52nd percentile among comparable filings
- Liabilities to assets ratio: 0.38; rating input score 28; 28th percentile among comparable filings
- Officer compensation ratio: 13.7%; rating input score 21; 21st percentile among comparable filings
Growth
- Program expense growth: 3.8% per year; rating input score 100; 32nd percentile among comparable filings
- Revenue growth: 3.7% per year; rating input score 100; 32nd percentile among comparable filings
- Asset growth: 8.5% per year; rating input score 100; 52nd percentile among comparable filings
Details
- Where the money goes: 75.3% of revenue deployed · 68.7% of spending went to programs
- Governance: 14 of 14 board members independent · 7 of 9 filing controls reported
- Programs: 3 filed program accomplishments · $3M in reported program spending
- Leadership: top reported pay $233K · 19 people listed · 2 of 6 pay-setting controls reported
- Consistency: 36 of 37 current checks pass · 1 finding to review
- Schedules: 9 filed schedules · includes major donors, foreign activity, grants, and executive pay
- Filing history: 15 filing years from 2009 to 2024
- Contacts: How to reach this organization
- Money network: 12 filed money-flow records
- Related organizations: 7 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Transparency & Controls: Foreign activity oversight: 7 of 8 not reported.
- High — Financial Efficiency: Fundraising efficiency scored 22/100.
- High — Sustainability: Operating margin scored 15/100.
- Review — Accountability: Governance controls: Independent financial-statement audit not reported.
- Review — Sustainability: Total-asset coverage ratio scored 52/100.
- High — Sustainability: Officer compensation ratio scored 21/100.
- High — Sustainability: Liabilities to assets ratio scored 28/100.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.