Turner Syndrome Global Alliance
Nonprofit profile at a glance
- EIN
- 465424047
- IRS 990-EZ coverage
- 2019–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2014
- Location
- Overland Park, KS, USA
- Phone
- 9132208177
- Rating
- 82
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Voluntary Health Associations & Medical Disciplines N.E.C.
Reported finances
- Revenue
- $1,698
- Expenses
- $19,494
- Assets
- $27,075
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
6 people listed
Executive titles in this filing
- Kelly Ranallo (President)
People named in this filing
- Kelly Ranallo (President)
- Denise Culin (Secretary)
- Angie Dunbar (Director)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
The mission, duty and purpose of the Turner Syndrome Global Alliance, Inc. is to connect science, resources, and funding to the Turner Syndrome community.
What it reported doing in 2025
TSGA continues to focus on funding research on Turner syndrome through the InsighTS Registry research. This is a collaborative project with a shared IRB working with clinic directors from multiple childrens hospitals across the country. In 2025, TSGA actively supported the recruitment of additional registry sites as well as shared patient friendly information to support patient recruitment. By the end of 2025, over 800 participants from 14 hospitals nationwide were enrolled, with additional hospitals onboarding to join the Registry. This year, the Registry has been highlighted in research abstracts and presented at professional conferences, and the Registry data is supporting multiple research initiatives. Results will be able to be quickly translated to care through the TSGA network of clinics, which TSGA continues to grow. In addition, TSGA funded summer research interns to support the InsighTS Registry with data confirmation and entry. Finally, TSGA supported an application to the NIH Rare Diseases Clinical Research Network (RDCRN) which was funded in the fall of 2025. This is an exciting collaborative effort that will change the future of care for all individuals with Turner syndrome.
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 44% for direct work, and 56% for grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and program spending has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 97
- Transparency & Controls: 82
- Sustainability: 24
- Growth: 0
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 91.9%; rating input score 92
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: -1,048.1%; rating input score 2; 2nd percentile among comparable filings
- Total-asset coverage ratio: 1.39; rating input score 56; 56th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -26% per year; rating input score 0; 16th percentile among comparable filings
- Revenue growth: -50.1% per year; rating input score 0; 6th percentile among comparable filings
- Asset growth: -21% per year; rating input score 0; 10th percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 91.9% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 3 filed program accomplishments · $18K in reported program spending
- Leadership: top reported pay $0 · 6 people listed
- Consistency: 8 of 8 current checks pass
- Schedules: 2 filed schedules
- Filing history: 7 filing years from 2019 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Sustainability: Operating margin scored 2/100.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- High — Growth: Asset growth scored 0/100.
- Review — Sustainability: Total-asset coverage ratio scored 56/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.