Thrive with Pyruvate Kinase Deficiency Organization

Nonprofit profile at a glance

EIN
871365230
IRS 990-EZ coverage
2022–2024
Forms available
Form 990-EZ 2024, Form 990-N 2021
Location
Bloomington, MN, USA
Rating
59
Verdict
MIXED
Rating confidence
Moderate
Sector
Specifically Named Diseases

Reported finances

Revenue
$104,752
Expenses
$121,587
Assets
$20,534

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

3 people listed

Executive titles in this filing

  • Tamara Schryver (President)

People named in this filing

  • Tamara Schryver (President)
  • Carl Lander (International Collaboration Coordinator and Record Keeper)
  • Conor Stoebner (Treasurer)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The organizations mission is to advocate educate and connect those with Pyruvate Kinase Deficiency a disorder that affects the red blood cells. This disease is very rare our organization provides resources to those affected by it by connecting patients with doctors who understand how to treat this rare disease.

What it reported doing in 2024

Thrive with PKD hosted a conference jointly with the Pyruvate Kinase Deficiency Foundation in 2024. The goal was to bring together people affected by PKD and doctors who are experts in the area. Thrive with PKD gave travel and lodging grants to eligible attendees to the conference making sure that as many people who needed to come were able to attend. This included some attendees from other countries U.K. Canada Australia Mexico. The large majority of attendees were from the United States.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 100% of its reported program spending out as grants.

The verdict

MIXED - The filed numbers largely add up. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 35
  • Transparency & Controls: 100
  • Sustainability: 17
  • Growth: 20

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 37.4%; rating input score 37
  • Program expense ratio: 32.2%; rating input score 32

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: -16.1%; rating input score 10; 10th percentile among comparable filings
  • Total-asset coverage ratio: 0.17; rating input score 16; 16th percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings

Growth

  • Program expense growth: -85% per year; rating input score 0; 2nd percentile among comparable filings
  • Revenue growth: -19.7% per year; rating input score 0; 2nd percentile among comparable filings
  • Asset growth: 25.6% per year; rating input score 100; 85th percentile among comparable filings

Details

  • Where the money goes: 37.4% of revenue deployed · 32.2% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 2 filed program accomplishments · $39K in reported program spending
  • Leadership: top reported pay $0 · 3 people listed
  • Consistency: 7 of 7 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 3 filing years from 2022 to 2024
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 37/100.
  • Moderate — Financial Efficiency: Program expense ratio scored 32/100.
  • High — Sustainability: Operating margin scored 10/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Sustainability: Total-asset coverage ratio scored 16/100.