The Susie Foundation Inc
Nonprofit profile at a glance
- EIN
- 462687969
- IRS 990-EZ coverage
- 2018–2025
- Forms available
- Form 990 2022, Form 990-EZ 2025, Form 990-N 2017
- Location
- West Hartford, CT, USA
- Phone
- 2034906694
- Rating
- 46
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Nerve, Muscle and Bone Diseases
Reported finances
- Revenue
- $82,583
- Expenses
- $79,930
- Assets
- $196,112
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
8 people listed
Executive titles in this filing
- Ryan Matthews (Founder & Executive Director)
People named in this filing
- Ryan Matthews (Founder & Executive Director)
- Neil Matthews (Board of Directors)
- Samantha Grenus (Board of Directors)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
The mission of The Susie Foundation is provide families living with Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease) with compassionate and enduring support services that help them overcome the adversities of the disease and access richer, fuller, and more meaningful lives.
What it reported doing in 2025
The Susie Foundation provided $69,197 in grant funding to 82 families living with Amyotrophic Lateral Sclerosis to help offset out-of-pocket medical support costs. By doing so, The Susie Foundation is helping individuals across New England living with Amyotrophic Lateral Sclerosis to continue residing safely and comfortably in their own homes, while receiving the support they need to achieve richer, fuller, and more meaningful lives.
Operating model
- Revenue model
- Other-operating. 66% of the money available for current operations came from other operating revenue.
- Distribution model
- Cannot be determined from the filing. The filing does not provide enough consistent spending detail to tell whether the nonprofit works directly or through others.
The verdict
MIXED - The filed numbers largely add up and revenue has grown recently. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 1
- Transparency & Controls: 100
- Sustainability: 53
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 1.1%; rating input score 1
- Program expense ratio: 1.1%; rating input score 1
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 3.2%; rating input score 50; 50th percentile among comparable filings
- Total-asset coverage ratio: 2.45; rating input score 70; 70th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
- Officer compensation ratio: 6.3%; rating input score 11; 11th percentile among comparable filings
Growth
- Program expense growth: -2.7% per year; rating input score 0; 40th percentile among comparable filings
- Revenue growth: 2.3% per year; rating input score 100; 59th percentile among comparable filings
- Asset growth: 11.3% per year; rating input score 100; 73rd percentile among comparable filings
Details
- Where the money goes: 1.1% of revenue deployed · 1.1% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $891 in reported program spending
- Leadership: top reported pay $0 · 8 people listed
- Consistency: 8 of 9 current checks pass · 1 finding to review
- Schedules: 4 filed schedules
- Filing history: 7 filing years from 2018 to 2025
- Contacts: How to reach this organization
- Money network: 1 filed money-flow record
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 1/100.
- High — Financial Efficiency: Program expense ratio scored 1/100.
- Moderate — Transparency & Controls: Part III transfer expenses within program total did not reconcile in the filed values.
- High — Growth: Program expense growth scored 0/100.
- Review — Sustainability: Operating margin scored 50/100.
- High — Sustainability: Officer compensation ratio scored 11/100.