The Scleroderma Foundation of California

Nonprofit profile at a glance

EIN
770229244
IRS 990 coverage
2010–2024
Forms available
Form 990 2024
Location
Los Angeles, CA, USA
Phone
4242276475
Rating
76
Verdict
SUPPORTED
Rating confidence
Moderate

Official website

Reported finances

Revenue
$944,564
Expenses
$448,214
Assets
$787,598
Liabilities
$2,589

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

15 people listed

Executive titles in this filing

  • ANDREW EMMETT (EXECUTIVE DIRECTOR)
  • LAURA FUHRMAN (PRESIDENT)
  • JOEL CHERMAN (VICE PRESIDENT)
  • DR DAN FURST (PAST PRESIDENT)

Highest reported compensation

  • ANDREW EMMETT (EXECUTIVE DIRECTOR): $129,989 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Empowering the scleroderma community to live better lives through programs committed to support, education, and research.pillars of our mission: support: inspiring our community through patient support services and resources for patients including 26 volunteer driven local community & peer led support groups, staff driven one-on-one professional guidance that allows them to thrive. Education: for medical professionals to help them understand and properly diagnosis scleroderma early, and for patients to help them and cope and thrive while living with scleroderma. Research: funding research projects that will lead the way to finding a cure for scleroderma.

What it reported doing in 2024

Healthcare and professional outreach program: we work closely with hospitals, clinics, and community-based organizations to integrate best practices and strengthen referral relationships. We aim to create a coordinated network of informed professionals who can deliver timely, compassionate, and comprehensive care ultimately improving outcomes and quality of life for the patients and families we serve. We partner with physicians, nurses, and allied health professionals to provide support and resources to help their patients, ensuring that providers connect them to appropriate services. We also work together through educational programs, collaborative initiatives, and direct communication. Our continuing medical education program was designed for primary care physicians, nurse practitioners, nurses and other allied healthcare professionals and is for early detection and diagnosis of scleroderma. This free, accredited cme exists to enhance patient outcomes and improve awareness of scleroderma among providers. The program is managed by the office of continuing medical education and lifelong learning at the university of Michigan medical school and is accredited by the accreditation council for continuing medical education (accme) and worth 3.75 ama pra category 1 credits. There is no fee to register or to claim cme credit.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 97% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and fundraising costs are high for each dollar raised.

Rating breakdown

  • Financial Efficiency: 52
  • Transparency & Controls: 94
  • Accountability: 90
  • Sustainability: 71
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 37.4%; rating input score 37
  • Program expense ratio: 78.5%; rating input score 78
  • Fundraising efficiency: $16.18 raised per $1 spent on fundraising; rating input score 53; 53rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 6 of 8 controls in place; rating input score 75
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 52.5%; rating input score 93; 93rd percentile among comparable filings
  • Total-asset coverage ratio: 1.76; rating input score 61; 61st percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 76; 76th percentile among comparable filings
  • Officer compensation ratio: 29%; rating input score 7; 7th percentile among comparable filings

Growth

  • Program expense growth: 4% per year; rating input score 100; 37th percentile among comparable filings
  • Revenue growth: 1.8% per year; rating input score 100; 23rd percentile among comparable filings
  • Asset growth: 1.7% per year; rating input score 100; 24th percentile among comparable filings

Details

  • Where the money goes: 37.4% of revenue deployed · 78.5% of spending went to programs
  • Governance: 14 of 14 board members independent · 6 of 8 filing controls reported
  • Programs: 4 filed program accomplishments · $352K in reported program spending
  • Leadership: top reported pay $130K · 15 people listed
  • Consistency: 28 of 28 current checks pass
  • Schedules: 6 filed schedules · includes major donors and grants
  • Filing history: 14 filing years from 2010 to 2024
  • Contacts: How to reach this organization
  • Money network: 2 filed money-flow records
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 37/100.
  • Review — Financial Efficiency: Fundraising efficiency scored 53/100.
  • Review — Accountability: Governance controls: Independent financial-statement audit not reported.
  • High — Sustainability: Officer compensation ratio scored 7/100.