The Rare Life

Nonprofit profile at a glance

EIN
884412307
IRS 990-EZ coverage
2023–2024
Forms available
Form 990-EZ 2024, Form 990-N 2022
Location
Bountiful, UT, USA
Phone
2082841715
Rating
77
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Personal Social Services

Official website

Reported finances

Revenue
$68,571
Expenses
$44,417
Assets
$37,800
Liabilities
$2,576

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

9 people listed

Executive titles in this filing

  • BRITTANY STEITZ (PRESIDENT/TR)

People named in this filing

  • MADELINE CHENEY (EXECUTIVE DI)
  • JUSTON CHENEY (CIO)
  • BRITTANY STEITZ (PRESIDENT/TR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The rare life's mission is to provide emotional support for parents of children with medical complexities and disabilities.

What it reported doing in 2024

Discussion groups the organization hosts discussion groups on a regular basis. These groups are held virtually and are facilitated by volunteer parent-listeners. These discussion groups provide a safe space for listeners to share their thoughts on the most recent episodes and create friendships with others in the community. We hosted and facilitated approximately 40 discussion groups held virtually.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and total assets are small relative to annual expenses; liquid coverage is unknown.

Rating breakdown

  • Financial Efficiency: 59
  • Transparency & Controls: 100
  • Sustainability: 55
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 48.6%; rating input score 49
  • Program expense ratio: 75%; rating input score 75

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: 35.2%; rating input score 85; 85th percentile among comparable filings
  • Total-asset coverage ratio: 0.85; rating input score 42; 42nd percentile among comparable filings
  • Liabilities to assets ratio: 0.07; rating input score 19; 19th percentile among comparable filings
  • Officer compensation ratio: 51.9%; rating input score 3; 3rd percentile among comparable filings

Growth

  • Program expense growth: 79.6% per year; rating input score 100; 96th percentile among comparable filings
  • Revenue growth: 56.4% per year; rating input score 100; 97th percentile among comparable filings
  • Asset growth: 66.9% per year; rating input score 100; 97th percentile among comparable filings

Details

  • Where the money goes: 48.6% of revenue deployed · 75% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 2 filed program accomplishments · $33K in reported program spending
  • Leadership: top reported pay $0 · 9 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 2 filing years from 2023 to 2024
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Mission deployment rate scored 49/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 42/100.
  • High — Sustainability: Officer compensation ratio scored 3/100.
  • High — Sustainability: Liabilities to assets ratio scored 19/100.