The Pulmonary Hypertension Association Inc

Nonprofit profile at a glance

EIN
650880021
IRS 990 coverage
2011–2024
Forms available
Form 990 2024, Form 990-T 2024
Location
Washington, DC, USA
Phone
3015653004
Rating
73
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Heart and Circulatory System Diseases, Disorders

Reported finances

Revenue
$8,460,561
Expenses
$8,868,474
Assets
$24,745,734
Liabilities
$3,409,576

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

28 people listed

Executive titles in this filing

  • MATIAS GRANATO (PRESIDENT & CEO)

Highest reported compensation

  • MATIAS GRANATO (PRESIDENT & CEO): $330,025 total reported compensation
  • KEVIN HEYEN (VP - DEVELOPMENT): $182,315 total reported compensation
  • TERESITA ESPOSITO (VP - FINANCE & OPERATIONS): $182,130 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To extend and improve the lives of those affected by pulmonary hypertension (ph).

What it reported doing in 2024

Pulmonary hypertension association registry (phar): accredited phcc's have an opportunity to participate in phar as both a quality improvement process and research activity. A patient registry is an organized system that collects data to evaluate certain outcomes for a population of people with a medical condition and is a useful tool for quality improvement of care and for research of rare diseases such as ph. Phar collects data from who group 1 ph (pulmonary arterial hypertensionpah) and who group 4 ph (chronic thromboembolic pulmonary hypertensioncteph) who are starting evaluation and/or treatment at an accredited phcc. Data is collected in conjunction with routine ph care team visits approximately every 3-6 months. At the end of 2024, there were 96 accredited phcc's and 74 centers participating phar with 3,442 patients ever enrolled in phar.

Operating model

Revenue model
Donor-supported. 71% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 95% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and program spending has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 70
  • Transparency & Controls: 75
  • Accountability: 100
  • Sustainability: 39
  • Growth: 20

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 78.6%; rating input score 79
  • Program expense ratio: 71.1%; rating input score 71
  • Fundraising efficiency: $6.28 raised per $1 spent on fundraising; rating input score 23; 23rd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: 1 of 6 controls in place; rating input score 17
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Missing
    • Compensation survey or study: Pass
    • Board or committee approval: Missing
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 72nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 9 of 9 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -4.8%; rating input score 20; 20th percentile among comparable filings
  • Total-asset coverage ratio: 2.79; rating input score 72; 72nd percentile among comparable filings
  • Liabilities to assets ratio: 0.14; rating input score 52; 52nd percentile among comparable filings
  • Officer compensation ratio: 15%; rating input score 19; 19th percentile among comparable filings

Growth

  • Program expense growth: -4.1% per year; rating input score 0; 6th percentile among comparable filings
  • Revenue growth: -2.6% per year; rating input score 0; 6th percentile among comparable filings
  • Asset growth: 4.2% per year; rating input score 100; 30th percentile among comparable filings

Details

  • Where the money goes: 78.6% of revenue deployed · 71.1% of spending went to programs
  • Governance: 21 of 21 board members independent · 9 of 9 filing controls reported
  • Programs: 2 filed program accomplishments · $6.3M in reported program spending
  • Leadership: top reported pay $330K · 28 people listed · 1 of 6 pay-setting controls reported
  • Highest-paid contractors: 5 contractors listed · $1.2M reported
  • Consistency: 40 of 40 current checks pass
  • Schedules: 8 filed schedules · includes major donors, grants, and executive pay
  • Filing history: 13 filing years from 2011 to 2024
  • Contacts: How to reach this organization
  • Money network: 7 filed money-flow records
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Fundraising efficiency scored 23/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Sustainability: Operating margin scored 20/100.
  • High — Sustainability: Officer compensation ratio scored 19/100.
  • Review — Sustainability: Liabilities to assets ratio scored 52/100.