The PAP Foundation Inc CO Cincinnati Childrens Hospital

Nonprofit profile at a glance

EIN
270094262
IRS 990 coverage
2023–2025
Forms available
Form 990 2025, Form 990-EZ 2022, Form 990-N 2017
Location
Cincinnati, OH, USA
Phone
5136368916
Rating
79
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Health Support Services

Official website

Reported finances

Revenue
$47,998
Expenses
$58,366
Assets
$558,554
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

5 people listed

Executive titles in this filing

  • Christopher Hameetman (President)
  • Tisha Wang MD (Vice President)

People named in this filing

  • Christopher Hameetman (President)
  • Tisha Wang MD (Vice President)
  • Steve Park (Second VP)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The PAP Foundation is a non-profit patient advocacy organization dedicated to finding a cure and to improving the lives of those affected by pulmonary alveolar proteinosis ("PAP").Through advocacy and collaboration, we promote research on PAP and provide information and support for PAP patients, healthcare professionals, and the public.

What it reported doing in 2025

Education Day: We hosted in-person educational events for physicians, scientists, patients, and families in 2025. PAP Education Day on May 17, 2025 in conjunction with the Patient and Experts Forum hosted by the Public Advisory Roundtable at the American Thoracic Society Meeting in San Francisco, CA, which included presentations on Personalized Medicine in Pulmonary Care. After the morning sessions, the PAP Foundation hosted a Question and Answer session for patients and family members with PAP physicians and scientists. This program involved 7 individuals, including patients, family members, physicians, and scientists.PAP Education Day on July 19, 2025 at the University of California Los Angeles in Los Angeles, CA included presentations on PAP 101: definitions, diagnosis, therapies and clinical trials, description of the PAP Foundation community, resources, and discussion of the Patient-Focused Drug Development Meeting that was hosted May 7, 2025. Thirty-three (33) patients, family members, physicians, and scientists registered for this event.PAP Education Day on September 13, 2025 at Trinity Life Sciences in Waltham, MA included presentations on PAP 101: definitions, diagnosis, therapies and clinical trials, description of the PAP Foundation community, resources, and how to get involved, and a Patient Perspective and ATS Patient Advocacy Roundtable. Twenty-five (25) patients, family members, physicians, and scientists registered for this event.

Operating model

Revenue model
Donor-supported. 84% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

SUPPORTED - A large share of available resources goes toward mission work and the filed numbers largely add up. Some filing-based governance responses are negative or unanswered and revenue has declined or grown slowly.

Rating breakdown

  • Financial Efficiency: 83
  • Transparency & Controls: 85
  • Accountability: 76
  • Sustainability: 49
  • Growth: 60

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 82.6%; rating input score 83
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 90.9%; rating input score 91; 19th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 3 of 7 controls in place; rating input score 43
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: -21.6%; rating input score 34; 34th percentile among comparable filings
  • Total-asset coverage ratio: 9.57; rating input score 64; 64th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 58; 58th percentile among comparable filings

Growth

  • Program expense growth: 22.5% per year; rating input score 100; 85th percentile among comparable filings
  • Revenue growth: -5.8% per year; rating input score 0; 39th percentile among comparable filings
  • Asset growth: 18.7% per year; rating input score 100; 88th percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 82.6% of spending went to programs
  • Governance: 5 of 5 board members independent · 3 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $48K in reported program spending
  • Leadership: top reported pay $0 · 5 people listed
  • Consistency: 18 of 19 current checks pass · 1 finding to review
  • Schedules: 4 filed schedules · includes major donors
  • Filing history: 3 filing years from 2023 to 2025
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Accountability: Governance controls: 3 of 6 not reported.
  • High — Growth: Revenue growth scored 0/100.
  • Moderate — Sustainability: Operating margin scored 34/100.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
  • Review — Sustainability: Officer compensation ratio scored 58/100.