The Kurt B Seydow Dystonia Foundation

Nonprofit profile at a glance

EIN
473396876
IRS 990-EZ coverage
2015–2025
Forms available
Form 990 2019, Form 990-EZ 2025
Location
Excelsior, MN, USA
Phone
6125590974
Rating confidence
Limited
Sector
Nerve, Muscle and Bone Diseases

Reported finances

Revenue
$0
Expenses
$2,024
Assets
$3,499
Liabilities
$0

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

3 people listed

Executive titles in this filing

  • KATHLEEN FOWKE (PRESIDENT & DIRECTOR)
  • RYAN WEBER (VICE PRESIDENT & DIRECTOR)

People named in this filing

  • KATHLEEN FOWKE (PRESIDENT & DIRECTOR)
  • RYAN WEBER (VICE PRESIDENT & DIRECTOR)
  • ANNETTE SEYDOW (DIRECTOR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Research and treatment of dystonia

What it reported doing in 2025

Kites2kure dystonia annual fundraising event did not occur this year. The organization's mission to fund dystonia research remained the same with respect to fundraising and grant activity.

Operating model

Revenue model
No positive adjusted resources. The filing reports no positive adjusted operating resources.
Distribution model
No current program activity. The filing reports no program spending for the current year.

The verdict

- The available evidence is not sufficient to produce an overall rating for this filing. This is not a warning sign.

Rating breakdown

  • Financial Efficiency: 0
  • Transparency & Controls: 82
  • Sustainability: 33
  • Growth: 0

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: Limited
  • Program expense ratio: 0%; rating input score 0

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: Limited
  • Total-asset coverage ratio: 1.73; rating input score 62; 62nd percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: -26.1% per year; rating input score 0; 16th percentile among comparable filings
  • Revenue growth: -18.2% per year; rating input score 0; 16th percentile among comparable filings
  • Asset growth: -4.9% per year; rating input score 0; 25th percentile among comparable filings

Details

  • Where the money goes: 0% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment
  • Leadership: top reported pay $0 · 3 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 1 filed schedules
  • Filing history: 8 filing years from 2015 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Program expense ratio scored 0/100.
  • High — Growth: Program expense growth scored 0/100.
  • High — Growth: Revenue growth scored 0/100.
  • High — Growth: Asset growth scored 0/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.