The International 22Q112 Foundation Inc
Nonprofit profile at a glance
- EIN
- 364540878
- IRS 990-EZ coverage
- 2011–2024
- Forms available
- Form 990 2023, Form 990-EZ 2024, Form 990-T 2024, Form 990-N 2008
- Location
- Matawan, NJ, USA
- Phone
- 6098289315
- Rating
- 47
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Human Service Organizations
Reported finances
- Revenue
- $82,853
- Expenses
- $120,252
- Assets
- $190,374
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
4 people listed
People named in this filing
- MARC WEINBERG (Chairman)
- MISSY DISIBIO (Chairman)
- MELISSA MAISENBACHER (Secretary)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Over the last 18 years, the International 22q11.2 Foundation has been successful in helping thousands of families by making valuable connections with top medical experts and support groups, creating awareness, supporting research, and delivering cutting edge information related to 22q. As we approach the next ten years, we want to expand our footprint and make 22q a household name
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
MIXED - The filed numbers largely add up and revenue has grown recently. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 19
- Transparency & Controls: 82
- Sustainability: 31
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 22%; rating input score 22
- Program expense ratio: 15.1%; rating input score 15
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: -45.1%; rating input score 14; 14th percentile among comparable filings
- Total-asset coverage ratio: 1.58; rating input score 59; 59th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -3.3% per year; rating input score 0; 39th percentile among comparable filings
- Revenue growth: 5.9% per year; rating input score 100; 73rd percentile among comparable filings
- Asset growth: 11.4% per year; rating input score 100; 75th percentile among comparable filings
Details
- Where the money goes: 22% of revenue deployed · 15.1% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $18K in reported program spending
- Leadership: top reported pay $0 · 4 people listed
- Consistency: 7 of 7 current checks pass
- Schedules: 2 filed schedules
- Filing history: 6 filing years from 2011 to 2024
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 22/100.
- High — Financial Efficiency: Program expense ratio scored 15/100.
- High — Sustainability: Operating margin scored 14/100.
- High — Growth: Program expense growth scored 0/100.
- Review — Sustainability: Total-asset coverage ratio scored 59/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.