The Epilepsy Association of Central Florida Inc D/b/a Epilepsy Association

Nonprofit profile at a glance

EIN
237247844
IRS 990 coverage
2010–2024
Forms available
Form 990 2024
Location
Orlando, FL, USA
Phone
4074221416
Rating
84
Verdict
STRONG
Rating confidence
Moderate
Sector
Health

Official website

Reported finances

Revenue
$904,636
Expenses
$900,035
Assets
$1,239,533
Liabilities
$158,806

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

14 people listed

Executive titles in this filing

  • ARDIT BITINCKA (PAST PRESIDENT)
  • KRAN RILEY (PRESIDENT)
  • ERIC WEDERBRAND (VICE PRESIDENT)
  • DAVID MANCHON (EXECUTIVE DIRECTOR)

Highest reported compensation

  • DAVID MANCHON (EXECUTIVE DIRECTOR): $95,653 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

See schedule othe epilepsy association of central Florida, inc. (eacf) is dedicated to improving the quality of life of persons affected by epilepsy/seizure disorders. Eacf's goals are to identify, define and advocate for the needs of persons affected by epilepsy, plan and implement strategies to meet those needs.

What it reported doing in 2024

Prevention and educationeacf has expanded its prevention and education programs worldwide through the use of online technology. Over four million people in over 150 countries are reached each month with epilepsy news, education and support. There were 156 in person programs given in 2020, offering accurate and timely information on epilepsy to public groups, schools, teachers, medical professionals, employers, family members, social service professionals and more. This is accomplished through the employment of a full-time health educator. Online www.epilepsyu.com is an epilepsy community and educational site offering support groups, courses on epilepsy, current news articles, information, webinars, and more. Continued on schedule 0. Prevention and education continued: epilepsyu.com, and, it's social media (facebook/twitter) now reach a monthly average of over 4,000,000 people in over 150 countries worldwide. Eacf added a new "social enterprise", www, epilepsystore.com, to both expand epilepsy awareness nationwide through the sale of epilepsy awareness merchandise and to raise funds for direct program services.in addition, eacf remains one of the nation's leaders in the education of and the prevention of shaken baby impact syndrome (sbis). This traumatic brain injury may result in seizures or even death. Eacf's award winning video and teaching curriculum on sbis is in use all over the world from school children and child care workers to maternity hospitals and new father programs.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 82
  • Transparency & Controls: 86
  • Accountability: 90
  • Sustainability: 42
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 87.6%; rating input score 88
  • Program expense ratio: 88%; rating input score 88
  • Fundraising efficiency: $9.6 raised per $1 spent on fundraising; rating input score 36; 36th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 91.7%; rating input score 92; 12th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
  • Governance controls: 6 of 8 controls in place; rating input score 75
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 0.5%; rating input score 38; 38th percentile among comparable filings
  • Total-asset coverage ratio: 1.38; rating input score 53; 53rd percentile among comparable filings
  • Liabilities to assets ratio: 0.13; rating input score 39; 39th percentile among comparable filings
  • Officer compensation ratio: 10.6%; rating input score 35; 35th percentile among comparable filings

Growth

  • Program expense growth: 3.1% per year; rating input score 100; 32nd percentile among comparable filings
  • Revenue growth: 2.8% per year; rating input score 100; 30th percentile among comparable filings
  • Asset growth: 1.9% per year; rating input score 100; 25th percentile among comparable filings

Details

  • Where the money goes: 87.6% of revenue deployed · 88% of spending went to programs
  • Governance: 17 of 17 board members independent · 6 of 8 filing controls reported
  • Programs: 2 filed program accomplishments · $792K in reported program spending
  • Leadership: top reported pay $96K · 14 people listed
  • Consistency: 24 of 25 current checks pass · 1 finding to review
  • Schedules: 4 filed schedules · includes major donors
  • Filing history: 14 filing years from 2010 to 2024
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Related organizations: Filed and resolved organization relationships.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Fundraising efficiency scored 36/100.
  • Moderate — Sustainability: Operating margin scored 38/100.
  • Review — Accountability: Governance controls: Independent financial-statement audit not reported.
  • Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
  • Review — Sustainability: Total-asset coverage ratio scored 53/100.
  • Moderate — Sustainability: Officer compensation ratio scored 35/100.
  • Moderate — Sustainability: Liabilities to assets ratio scored 39/100.