The Ehe Foundation
Nonprofit profile at a glance
- EIN
- 473238441
- IRS 990 coverage
- 2018–2025
- Forms available
- Form 990 2025, Form 990-EZ 2017
- Location
- Hobart, WI, USA
- Phone
- 9062806432
- Rating
- 71
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Specifically Named Diseases
Reported finances
- Revenue
- $1,165,807
- Expenses
- $512,913
- Assets
- $2,476,924
- Liabilities
- $197,014
Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
9 people listed
Executive titles in this filing
- JENNI KOVACH (PRESIDENT)
Highest reported compensation
- DENISE ROBINSON (EXEC DIR/DIR): $134,644 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To find treatments and a cure for the rare cancer, epithelioid hemangioendothelioma (ehe), by advancing research and driving collaboration between patients, researchers, and clinicians.
What it reported doing in 2025
Research: the ehe foundation funded research projects in basic and translational science aimed to advance knowledge in the disease, enabling the identification of effective treatments for ehe. In addition to funding external research, the foundation funded and advanced patient-led research initiatives including biobanking of ehe biospecimens, develpment of a global patient registry, and expanding ehe cell-line development. The foundation continued its growth of a global patient-led research network, including clinician-scientists, researchers, and advocates in a scientific symposium.
Operating model
- Revenue model
- Donor-supported. 92% of the money available for current operations came from contributions and gifts.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 76% for direct work, and 24% for grants.
The verdict
SUPPORTED - The filed numbers largely add up and most voting board members are independent. A relatively small share of available resources goes toward mission work and the filing reports few safeguards for money sent abroad.
Rating breakdown
- Financial Efficiency: 59
- Transparency & Controls: 65
- Accountability: 95
- Sustainability: 74
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 41%; rating input score 41
- Program expense ratio: 85.6%; rating input score 86
- Fundraising efficiency: $38.57 raised per $1 spent on fundraising; rating input score 71; 71st percentile among comparable filings
Transparency & Controls
- Consistency checks: 86.7%; rating input score 87; 3rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: 0 of 8 controls in place; rating input score 0
- Claims monitoring procedures: Fail
- Requires narrative reports: Fail
- Conducts field audits: Fail
- May suspend future funding: Fail
- Requires financial reports: Fail
- Conducts site visits: Fail
- Requires grant agreements: Fail
- May require repayment: Fail
- Grant itemization coverage: 80.6%; rating input score 81; 39th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 7 of 8 controls in place; rating input score 88
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: NotApplicable
- Other executive compensation review process: Fail
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 56%; rating input score 92; 92nd percentile among comparable filings
- Total-asset coverage ratio: 4.83; rating input score 84; 84th percentile among comparable filings
- Liabilities to assets ratio: 0.08; rating input score 38; 38th percentile among comparable filings
- Officer compensation ratio: 26.3%; rating input score 10; 10th percentile among comparable filings
Growth
- Program expense growth: 6.9% per year; rating input score 100; 45th percentile among comparable filings
- Revenue growth: 14.3% per year; rating input score 100; 73rd percentile among comparable filings
- Asset growth: 21.3% per year; rating input score 100; 81st percentile among comparable filings
Details
- Where the money goes: 41% of revenue deployed · 85.6% of spending went to programs
- Governance: 8 of 8 board members independent · 7 of 8 filing controls reported
- Programs: 2 filed program accomplishments · $439K in reported program spending
- Leadership: top reported pay $135K · 9 people listed
- Consistency: 32 of 34 current checks pass · 2 findings to review
- Schedules: 8 filed schedules · includes major donors, foreign activity, and grants
- Filing history: 8 filing years from 2018 to 2025
- Contacts: How to reach this organization
- Money network: 2 filed money-flow records
- Related organizations: 1 filed related-organization link
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Mission deployment rate scored 41/100.
- High — Transparency & Controls: Foreign activity oversight: 8 of 8 not reported.
- Review — Accountability: Governance controls: Other executive compensation review process not reported.
- High — Sustainability: Officer compensation ratio scored 10/100.
- Moderate — Transparency & Controls: Schedule A contributions reconciliation did not reconcile in the filed values.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
- Moderate — Sustainability: Liabilities to assets ratio scored 38/100.