The Children's Cancer Cause Inc

What it reported doing in 2024

Advocacy education: the organization leads several activities focused on educating patients, survivors, and their families about the impact of federal and state health policy on childhood cancer and survivorship care. Educational programs include monthly newsletters, email alerts on pending legislation and a toolkit providing strategies and tactics on effective advocacy. The organization works to educate legislative and regulatory decision makers on the childhood cancer experience and policy needs. Each month the organization engages in a thoughtful, analytical process reviewing timely and relevant policy issues impacting children with cancer. This information is distributed through a variety of electronic media to patients, survivors and families and informs the policy agenda for the organization and other childhood cancer foundations.we promote policies and programs that aim to accelerate the development of safer, more effective cancer therapies for children and better address the unique needs and lifelong health challenges experienced by childhood cancer survivors and their families.children's cancer awareness and advocacy day: this day brings together pediatric patients, young adult survivors, and families for a day of mobilizing against childhood cancer. The organization partners with other organizations to offer a training workshop for the lobby day which familiarizes survivors with the federal legislative and appropriations process and instructs attendees on effective messaging strategies for visits with congressional members and staff. Public policy advocacy: working closely with leaders in congress, federal agencies, industry, and the broader cancer community, we serve as a dedicated voice of children with cancer, families, and survivors in national debates on health care and cancer policy. Through grassroots advocacy and presentations to government agencies, policy makers, coalitions, and stakeholders, this program provides information on the impact of federal policy on children with cancer and survivors. The purpose is to facilitate the development and approval of more effective and less toxic therapies for children with cancer and ensures appropriate care for survivors through education on the barriers to drug development and the consequences of current treatments. Working closely with leaders in congress, federal agencies, industry, and the broader cancer community, we serve as a dedicated voice of children with cancer, families, and survivors in national debates on health care and cancer policy. The organization also utilizes website education, an advocacy toolkit and monthly newsletters to facilitate its cause. In addition the organization has initiated a 'college scholars' program providing scholarships to survivors of childhood cancer.

Financial Efficiency

• Mission deployment rate: 64.7%; rating input score 65
• Program expense ratio: 71.4%; rating input score 71
• Fundraising efficiency: $5.2 raised per $1 spent on fundraising; rating input score 19; 19th percentile among comparable filings

Transparency & Controls

• Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
• Pay-setting controls: 1 of 6 controls in place; rating input score 17
  • Compensation committee: Missing
  • Independent consultant: Missing
  • Other Form 990s reviewed: Missing
  • Written employment contract: Missing
  • Compensation survey or study: Missing
  • Board or committee approval: Pass
• Foreign activity oversight: Limited
• Grant itemization coverage: 100%; rating input score 100; 76th percentile among comparable filings
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
• Governance controls: 7 of 8 controls in place; rating input score 88
  • Conflict-of-interest policy: Pass
  • Whistleblower policy: Pass
  • Document-retention policy: Pass
  • CEO compensation review process: Pass
  • Other executive compensation review process: NotApplicable
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Fail
  • Independent financial-statement audit: Pass

Sustainability

• Operating margin: 15.4%; rating input score 70; 70th percentile among comparable filings
• Total-asset coverage ratio: 1.22; rating input score 49; 49th percentile among comparable filings
• Liabilities to assets ratio: 0.06; rating input score 50; 50th percentile among comparable filings
• Officer compensation ratio: 43.2%; rating input score 3; 3rd percentile among comparable filings

Growth

• Program expense growth: 6.4% per year; rating input score 100; 49th percentile among comparable filings
• Revenue growth: 3.2% per year; rating input score 100; 32nd percentile among comparable filings
• Asset growth: 3.8% per year; rating input score 100; 33rd percentile among comparable filings