The Champ Foundation
Nonprofit profile at a glance
- EIN
- 475555752
- IRS 990 coverage
- 2020–2024
- Forms available
- Form 990 2024, Form 990-EZ 2019
- Location
- Durham, NC, USA
- Phone
- 7278712667
- Rating
- 86
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Fund Raising and/or Fund Distribution
Reported finances
- Revenue
- $73,758
- Expenses
- $130,332
- Assets
- $244,742
- Liabilities
- $0
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
5 people listed
Executive titles in this filing
- Jeffrey Reynolds (President)
- Elizabeth Reynolds (Vice President)
People named in this filing
- Walker Cole Arledge (Board Member)
- Jeffrey Reynolds (President)
- Elizabeth Reynolds (Vice President)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
In 2024, The Champ Foundation continued to support a multi-site Natural History Study at the Cleveland Clinic and the the Children's HOspital of Philadelphia and the Champ Foundation Registry, a research study of individuals with single large scale mtDNA deletion syndromes, like Pearson syndrome. We support patient travel to participate in the Natural History Study. We continued to fund research projects at University College of London and Children's Hospital of Philadelphia.
What it reported doing in 2024
In 2023, The Champ Foundation continued to support a multi-site Natural History Study at the Cleveland Clinic and Children's Hospital of Philadelphia and the Champ Foundation Registry, a research study of individuals with single large-scale mitochondrial DNA deletions (SLSMDS). We support patient travel to participate in the Natural History Study. We continued to fund research projects at CHOP, University of Cambridge, University of Pittsburgh, and University College of London. We disseminated findings from our registry data through peer reviewed manuscripts and mitochondrial disease conferences.
Operating model
- Revenue model
- Donor-supported. 99% of the money available for current operations came from contributions and gifts.
- Distribution model
- Grant intermediary. The nonprofit sent 81% of its reported program spending out as grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Program spending has declined or grown slowly and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 88
- Transparency & Controls: 94
- Accountability: 88
- Sustainability: 36
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 98.2%; rating input score 98
- Fundraising efficiency: Limited
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 60th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
- Governance controls: 5 of 7 controls in place; rating input score 71
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: NotApplicable
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: -76.7%; rating input score 24; 24th percentile among comparable filings
- Total-asset coverage ratio: 1.88; rating input score 33; 33rd percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 69; 69th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 60; 60th percentile among comparable filings
Growth
- Program expense growth: -5% per year; rating input score 0; 38th percentile among comparable filings
- Revenue growth: 1.3% per year; rating input score 100; 65th percentile among comparable filings
- Asset growth: 6.9% per year; rating input score 100; 73rd percentile among comparable filings
Details
- Where the money goes: 100% of revenue deployed · 98.2% of spending went to programs
- Governance: 5 of 5 board members independent · 5 of 7 filing controls reported
- Programs: 1 filed program accomplishment · $128K in reported program spending
- Leadership: top reported pay $0 · 5 people listed
- Consistency: 17 of 17 current checks pass
- Schedules: 4 filed schedules · includes major donors and grants
- Filing history: 5 filing years from 2020 to 2024
- Contacts: How to reach this organization
- Money network: 2 filed money-flow records
- Related organizations: 1 filed related-organization link
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Growth: Program expense growth scored 0/100.
- High — Sustainability: Operating margin scored 24/100.
- Review — Accountability: Governance controls: Independent financial-statement audit not reported.
- Moderate — Sustainability: Total-asset coverage ratio scored 33/100.