Center for Inherited Blood Disorders
Legal name: The Center for Cc&d of Inherited Blood Disorders
Nonprofit profile at a glance
- EIN
- 270179192
- IRS 990 coverage
- 2010–2024
- Official website data refreshed
- Sep 2026
- Forms available
- Form 990 2024
- Location
- Orange, CA, USA
- Phone
- (714) 221-1200
- Rating
- 90
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Hospital, Specialty
Reported finances
- Revenue
- $33,626,570
- Expenses
- $19,296,662
- Assets
- $84,988,780
- Liabilities
- $19,769,847
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
19 people listed
Executive titles in this filing
- AMIT SONI MD (VICE PRESIDENT)
- DIANE J NUGENT MD (PRESIDENT/CHAIRPERSON)
- BARRY STATON (CHIEF EXECUTIVE OFFICER & TREASURER)
Highest reported compensation
- BARRY STATON (CHIEF EXECUTIVE OFFICER & TREASURER): $457,302 total reported compensation
- ESTEBAN GOMEZ (PHYSICIAN): $335,445 total reported compensation
- MICHAEL WARDEN (CHIEF FINANCIAL OFFICER): $312,024 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To serve children and adults with genetic blood disorders, and their families, with comprehensive care tailored just for them.
What it reported doing in 2024
The center for comprehensive care and diagnostics of inherited blood disorders (cibd) is a community based clinic that provides comprehensive care for children and adults with rare, chronic inherited blood disorders utilizing the comprehensive care model. As a safety net clinic, cibd provides increased access to subspeciality care through a multidisciplinary team approach. Through pharmacy services and innovative health information technology, cibd is able to educate patients and families as well as monitor and drive down cost of care through the 340b program.
Operating model
- Revenue model
- Other-operating. 65% of the money available for current operations came from other operating revenue.
- Distribution model
- Hybrid. The nonprofit split its reported program spending across 72% for direct work, and 28% for grants.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Program spending has declined or grown slowly and reported officer compensation is a large share of total spending, which may reflect staffing concentration.
Rating breakdown
- Financial Efficiency: 85
- Transparency & Controls: 96
- Accountability: 100
- Sustainability: 75
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 87.5%; rating input score 87
- Fundraising efficiency: Limited
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 62nd percentile among comparable filings
- Pay-setting controls: 5 of 6 controls in place; rating input score 83
- Compensation committee: Pass
- Independent consultant: Pass
- Other Form 990s reviewed: Pass
- Written employment contract: Missing
- Compensation survey or study: Pass
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: 100%; rating input score 100; 43rd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 66th percentile among comparable filings
- Governance controls: 9 of 9 controls in place; rating input score 100
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Pass
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 42.6%; rating input score 92; 92nd percentile among comparable filings
- Total-asset coverage ratio: 4.4; rating input score 83; 83rd percentile among comparable filings
- Liabilities to assets ratio: 0.23; rating input score 54; 54th percentile among comparable filings
- Officer compensation ratio: 14%; rating input score 10; 10th percentile among comparable filings
Growth
- Program expense growth: -5.8% per year; rating input score 0; 3rd percentile among comparable filings
- Revenue growth: 1.9% per year; rating input score 100; 17th percentile among comparable filings
- Asset growth: 17.2% per year; rating input score 100; 85th percentile among comparable filings
Details
- What they do: 6 programs and campaigns described on the official site
- Where the money goes: 100% of revenue deployed · 87.5% of spending went to programs
- Governance: 8 of 8 board members independent · 9 of 9 filing controls reported
- Programs: 1 filed program accomplishment · $16.9M in reported program spending
- Leadership: top reported pay $457K · 19 people listed · 5 of 6 pay-setting controls reported
- Highest-paid contractors: 5 contractors listed · $3.8M reported
- Consistency: 33 of 33 current checks pass
- Schedules: 6 filed schedules · includes major donors, grants, and executive pay
- Filing history: 15 filing years from 2010 to 2024
- Contacts: How to reach this organization
- Money network: 34 filed money-flow records
- Related organizations: 24 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
- Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Growth: Program expense growth scored 0/100.
- High — Sustainability: Officer compensation ratio scored 10/100.
- Review — Sustainability: Liabilities to assets ratio scored 54/100.