The Butterfly Children Fund

Nonprofit profile at a glance

EIN
812541996
IRS 990-EZ coverage
2016–2025
Official website data refreshed
Sep 2026
Forms available
Form 990-EZ 2025, Form 990-N 2021
Location
Denver, CO, US
Phone
(303) 523-4297
Rating
94
Verdict
STRONG
Rating confidence
Moderate
Sector
Single Organization Support

Official website

Reported finances

Revenue
$80,173
Expenses
$106,293
Assets
$139,448

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • SUSIE WARTA (PRESIDENT)

People named in this filing

  • SUSIE WARTA (PRESIDENT)
  • MATT WARTA (TREASURER)
  • KATIE WAFER (PRES ELECT)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To honor the original commitment to support EB families through the EB Family Assistance Fund; to continue to host Camp Spirit Colorado each February; and to now utilize a portion of funds raised each year to support the groundbreaking research taking place in the EB medical community.

What it reported doing in 2025

Fundraiser to support the children's hospital Colorado foundation family assistance fund adn the eb endowment fund to benefit families with epidermolysis bullosa.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Hybrid. The nonprofit split its reported program spending across 70% for direct work, and 30% for grants.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and total assets are small relative to annual expenses; liquid coverage is unknown.

Rating breakdown

  • Financial Efficiency: 96
  • Transparency & Controls: 100
  • Sustainability: 25
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 90%; rating input score 90

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: -32.6%; rating input score 16; 16th percentile among comparable filings
  • Total-asset coverage ratio: 1.31; rating input score 55; 55th percentile among comparable filings
  • Liabilities to assets ratio: Limited
  • Officer compensation ratio: 4.1%; rating input score 11; 11th percentile among comparable filings

Growth

  • Program expense growth: 15.7% per year; rating input score 100; 77th percentile among comparable filings
  • Revenue growth: 6.3% per year; rating input score 100; 73rd percentile among comparable filings
  • Asset growth: 18.9% per year; rating input score 100; 83rd percentile among comparable filings

Details

  • What they do: 5 programs and campaigns described on the official site · 1 operating location identified
  • Where the money goes: 100% of revenue deployed · 90% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 2 filed program accomplishments · $96K in reported program spending
  • Leadership: top reported pay $0 · 8 people listed
  • Consistency: 7 of 7 current checks pass
  • Schedules: 4 filed schedules
  • Filing history: 6 filing years from 2016 to 2025
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Sustainability: Operating margin scored 16/100.
  • Review — Sustainability: Total-asset coverage ratio scored 55/100.
  • High — Sustainability: Officer compensation ratio scored 11/100.