The Assoc of Hidradenitis Suppurativa and Inflammatory Disease
Nonprofit profile at a glance
- EIN
- 873340305
- IRS 990 coverage
- 2024–2024
- Forms available
- Form 990 2024, Form 990-EZ 2023, Form 990-N 2022
- Location
- Ypsilanti, MI, USA
- Phone
- 2489259816
- Rating
- 70
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
Reported finances
- Revenue
- $304,570
- Expenses
- $324,241
- Assets
- $23,861
- Liabilities
- $0
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
7 people listed
Executive titles in this filing
- Jasmine Espy (CEO / President)
People named in this filing
- Muriel Espy (Secretary)
- Jerome Espy Sr (Treasurer)
- Martin DeBenedetto (Patient Engagement Advisor)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
We empower individuals with Hidradenitis Suppurativa HS inflammatory diseases to reclaim their lives through holistic resources personalized care that address physical, emotional, mental, and spiritual challenges. Committed to health equity and policy reform, we advocate for accessible and inclusive care while fostering community.
What it reported doing in 2024
Summits Reclaim Hidradenitis Suppurativa HS Summit is a patient-centered event created to educate, advocate for, and heal patients through a series of sessions led by top HS specialists, influencers, and somatic practitioners. What started as a virtual event has now evolved into a three-day in-person/ virtual hybrid summit, providing a safe and supportive space for individuals with HS and other inflammatory diseases to learn, heal, and grow physically, mentally, and emotionally. This summit empowers participants to better understand their condition, its causes, and potential short - and long-term solutions. It fosters connections with HS specialists and other HS Warriors, making expert care more accessible and combating the isolation and shame often felt by those living with HS. Through deep knowledge and lived experience of both scientific and patient perspectives, we aim to show the HS community that they deserve to feel supported, understood, and valued as patients and as people.
Operating model
- Revenue model
- Donor-supported. 100% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and a large share of available resources goes toward mission work. Some filing-based governance responses are negative or unanswered and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 62
- Transparency & Controls: 92
- Accountability: 70
- Sustainability: 32
- Growth: 40
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 71.3%; rating input score 71
- Program expense ratio: 66.9%; rating input score 67
- Fundraising efficiency: Limited
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
- Pay-setting controls: Limited
- Foreign activity oversight: Limited
- Grant itemization coverage: Limited
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 2 of 7 controls in place; rating input score 29
- Conflict-of-interest policy: Pass
- Whistleblower policy: Fail
- Document-retention policy: Fail
- CEO compensation review process: NotApplicable
- Other executive compensation review process: NotApplicable
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Fail
- Audit committee oversight: Missing
- Independent financial-statement audit: Fail
Sustainability
- Operating margin: -6.5%; rating input score 27; 27th percentile among comparable filings
- Total-asset coverage ratio: 0.07; rating input score 5; 5th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 80; 80th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 69; 69th percentile among comparable filings
Growth
- Program expense growth: Limited
- Revenue growth: 107.6% per year; rating input score 100; 99th percentile among comparable filings
- Asset growth: -58.4% per year; rating input score 0; 1st percentile among comparable filings
Details
- Where the money goes: 71.3% of revenue deployed · 66.9% of spending went to programs
- Governance: 6 of 6 board members independent · 2 of 7 filing controls reported
- Programs: 2 filed program accomplishments · $217K in reported program spending
- Leadership: top reported pay $0 · 7 people listed
- Consistency: 18 of 18 current checks pass
- Schedules: 3 filed schedules · includes major donors
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Accountability: Governance controls: 4 of 6 not reported.
- High — Sustainability: Operating margin scored 27/100.
- High — Growth: Asset growth scored 0/100.
- High — Sustainability: Total-asset coverage ratio scored 5/100.