The Alexion Charitable Foundation Inc

What it reported funding in 2025

The foundation reported 12 grants totaling $1,090,670. The stated grant purposes included the grant will support the project titled abc health matters: managing rare diseases and chronic health issues which is an introductory health literacy program that empowers canadians to manage their health more effectively by increasing their confidence when talking about and making decisions regarding health issues with family, friends and health professionals. renewed support from the alexion charitable foundation would allow us to add additional resources to the new stream of the abc health matters program which was designed to meet the needs of families impacted by rare diseases and chronic health issues. the program will include one new targeted workbook, workshops, outreach to community organizations and health care professionals, a dedicated program landing page, and communications and promotional activities to raise awareness about program offerings, with special attention during october's health literacy month., the grant will support the project titled special day services for young adults living with rare diseases and rare cancers across the uk in 2025 for the following purpose: the project is dedicated to give young adults living with rare diseases and rare cancers, and their caregivers/family much-needed time out from the reality of living with a rare disease. we do this by providing enjoyable and inclusive memory-making experiences which give hope, promote resilience and enhance coping strategies. our disease agnostic approach means we aim to reach young adults with as wide a range of diseases as possible by promoting our services across medical settings and patient advocacy groups across the uk., and the grant will support the project titled mission/flight coordination: healing journeys for patients battling rare diseases to coordinate free air and ground transportation so patients can access specialized medical care and treatment outside of their geographic area to treat and battle illnesses and other health afflictions including rare and ultra-rare diseases that could be life threatening if the patient does not receive the specialized care that they need. with the consolidation of healthcare entities, we are having more and more patients turn to us for help to access specialized care and treatment that is not available to them in their geographic area. we provide our services for as long and as often as a patient needs our help. since 1996, we have scheduled over 108,000 patient/passenger missions who have traveled more than 16 million to more than 750 medical facilities. distance should never be an obstacle for patients to access the medical care they need and deserve., plus 9 other reported purposes.

Grant Deployment

• Grant deployment ratio: 100%; rating input score 100; 92nd percentile among comparable filings

Cost Efficiency

• Grant expense ratio: 87.5%; rating input score 88; 66th percentile among comparable filings

Transparency

• Grant recipient disclosure: Yes; rating input score 100

Compliance

• Part VII-B activity disclosures: 19 of 19 controls in place; rating input score 100
  • Property sale or exchange with a disqualified person: Pass
  • Borrowing from or lending to a disqualified person: Pass
  • Goods, services, or facilities involving a disqualified person: Pass
  • Compensation paid to a disqualified person: Pass
  • Assets transferred to a disqualified person: Pass
  • Payment to a government official: Pass
  • Uncorrected prior self-dealing: Pass
  • Prior-year undistributed income: Pass
  • Excess business holdings: Pass
  • Investments that may jeopardize charitable purposes: Pass
  • Uncorrected prior-year jeopardizing investments: Pass
  • Attempt to influence legislation: Pass
  • Attempt to influence an election: Pass
  • Grants to individuals: Pass
  • Grants to organizations: Pass
  • Spending for a noncharitable purpose: Pass
  • Funds received for a personal-benefit contract: Pass
  • Premiums paid on a personal-benefit contract: Pass
  • Prohibited tax-shelter transaction: Pass
• Filing consistency checks: 9; rating input score 100

Endowment Health

• Endowment-health comparison: 6.13; rating input score 9; 9th percentile among comparable filings