T1d Exchange Inc

Nonprofit profile at a glance

EIN
451623549
IRS 990 coverage
2013–2024
Forms available
Form 990 2024, Form 990-T 2024
Location
Boston, MA, USA
Phone
6178926100
Rating
82
Verdict
STRONG
Rating confidence
Standard
Sector
Health, General and Financing

Official website

Reported finances

Revenue
$5,447,366
Expenses
$9,950,578
Assets
$11,048,909
Liabilities
$2,237,402

Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

18 people listed

Executive titles in this filing

  • DAVID WALTON (PRESIDENT/SECRETARY)

Highest reported compensation

  • DAVID WALTON (PRESIDENT/SECRETARY): $475,770 total reported compensation
  • OSAGIE EBEKOZIEN (CHIEF M.O. EXECUTIVE VP QI): $339,234 total reported compensation
  • WENDY WOLF (VP OF REGISTRY): $300,029 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Through real-world evidence and clinical data collection and analysis, our programs provide novel insights that identify gaps in care and refine best practices to improve the lives of those living with diabetes. T1d exchange supports quality improvement and innovation through its quality improvement collaborative (t1dx-qi), online patient registry, and data-oriented research services. Through a knowledge-sharing and collaboration-focused approach, t1d exchange accelerates real-world impact by providing clinicians, researchers, industry partners, and advocates with the resources and services they need for better decision support and population health management.

What it reported doing in 2024

T1d exchange maintains three key programs, the quality improvement collaborative, the t1d exchange registry, and custom research services. The t1d exchange quality improvement collaborative consists of a learning collaborative comprised of diabetes centers from across the us, and a companion data platform integrating emr data to redefine best practices, enhance the quality of care, and ultimately generate better outcomes. The t1d exchange registry is an online virtual registry comprised of individuals with type 1 diabetes and/or their caregivers who participate in research. Registry participants provide patient-reported information on their care and management of diabetes. Finally, t1d exchange provides custom research services that combine its analytics with additional offerings such as custom surveys, interviews, focus groups, device data integration, etc. This model helps connect patients, providers, industry and academia so that innovation is accelerated and care is optimized.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Expenses are high relative to revenue and some related-organization disclosures are missing.

Rating breakdown

  • Financial Efficiency: 85
  • Transparency & Controls: 76
  • Accountability: 95
  • Sustainability: 19
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 100%; rating input score 100
  • Program expense ratio: 69%; rating input score 69
  • Fundraising efficiency: $22.21 raised per $1 spent on fundraising; rating input score 62; 62nd percentile among comparable filings

Transparency & Controls

  • Consistency checks: 93.3%; rating input score 93; 17th percentile among comparable filings
  • Pay-setting controls: 3 of 6 controls in place; rating input score 50
    • Compensation committee: Missing
    • Independent consultant: Missing
    • Other Form 990s reviewed: Missing
    • Written employment contract: Pass
    • Compensation survey or study: Pass
    • Board or committee approval: Pass
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: No; rating input score 0

Accountability

  • Independent voting board: 90.9%; rating input score 91; 21st percentile among comparable filings
  • Governance controls: 9 of 9 controls in place; rating input score 100
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: Pass
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -82.7%; rating input score 1; 1st percentile among comparable filings
  • Total-asset coverage ratio: 1.11; rating input score 41; 41st percentile among comparable filings
  • Liabilities to assets ratio: 0.2; rating input score 44; 44th percentile among comparable filings
  • Officer compensation ratio: 21.6%; rating input score 11; 11th percentile among comparable filings

Growth

  • Program expense growth: 5.9% per year; rating input score 100; 45th percentile among comparable filings
  • Revenue growth: 4.5% per year; rating input score 100; 37th percentile among comparable filings
  • Asset growth: 8.8% per year; rating input score 100; 54th percentile among comparable filings

Details

  • Where the money goes: 100% of revenue deployed · 69% of spending went to programs
  • Governance: 10 of 11 board members independent · 9 of 9 filing controls reported
  • Programs: 1 filed program accomplishment · $6.9M in reported program spending
  • Leadership: top reported pay $476K · 18 people listed · 3 of 6 pay-setting controls reported
  • Highest-paid contractors: 5 contractors listed · $1.1M reported
  • Consistency: 31 of 32 current checks pass · 1 finding to review
  • Schedules: 6 filed schedules · includes major donors, executive pay, and related organizations
  • Filing history: 11 filing years from 2013 to 2024
  • Contacts: How to reach this organization
  • Money network: 8 filed money-flow records
  • Related organizations: 1 filed related-organization link
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.
  • Staff and benefit plans: Retirement and health plans the organization files with the Department of Labor, and the people in them.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Sustainability: Operating margin scored 1/100.
  • High — Transparency & Controls: Related-party transparency scored 0/100.
  • Moderate — Sustainability: Total-asset coverage ratio scored 41/100.
  • High — Sustainability: Officer compensation ratio scored 11/100.
  • Review — Transparency & Controls: Schedule R controlled transactions itemized did not reconcile in the filed values.
  • Moderate — Sustainability: Liabilities to assets ratio scored 44/100.