Spasmodictorticollis.org
Legal name: STDystonia Inc
Nonprofit profile at a glance
- EIN
- 391663350
- IRS 990-EZ coverage
- 2009–2018
- Official website data refreshed
- Sep 2026
- Forms available
- Form 990 2010, Form 990-EZ 2018
- Location
- Mukwonago, WI, USA
- Phone
- 2626620307
- Rating
- 65
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Nerve, Muscle and Bone Diseases
Reported finances
- Revenue
- $7
- Expenses
- $1,116
- Assets
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2018. Amounts in USD.
Leadership & pay
9 people listed
Executive titles in this filing
- Bonnie Hawkins (President)
- Glenn Piller (Vice President)
People named in this filing
- Bonnie Hawkins (President)
- Eileen Cahill (Director)
- Pam Garritano (Director)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2018. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Helping people with Dystonia become improved human beings; provide them with hope for the future; help them readapt into society.
What it reported doing in 2018
Publication of quarterly 20/24 page news magazine
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and a large share of available resources goes toward mission work. A relatively small share of total spending goes to programs and expenses are high relative to revenue.
Rating breakdown
- Financial Efficiency: 64
- Transparency & Controls: 82
- Sustainability: 7
- Growth: 0
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 100%; rating input score 100
- Program expense ratio: 5.1%; rating input score 5
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: -15,842.9%; rating input score 0; 0th percentile among comparable filings
- Total-asset coverage ratio: 0; rating input score 2; 2nd percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -20.4% per year; rating input score 0; 18th percentile among comparable filings
- Revenue growth: -14.6% per year; rating input score 0; 20th percentile among comparable filings
- Asset growth: -16% per year; rating input score 0; 14th percentile among comparable filings
Details
- What they do: Mission, programs, and operating context captured from the official website.
- Where the money goes: 100% of revenue deployed · 5.1% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 2 filed program accomplishments · $57 in reported program spending
- Leadership: top reported pay $0 · 9 people listed
- Consistency: 5 of 5 current checks pass
- Schedules: 3 filed schedules
- Filing history: 9 filing years from 2009 to 2018
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Program expense ratio scored 5/100.
- High — Sustainability: Operating margin scored 0/100.
- High — Growth: Program expense growth scored 0/100.
- High — Growth: Revenue growth scored 0/100.
- High — Sustainability: Total-asset coverage ratio scored 2/100.
- High — Growth: Asset growth scored 0/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.