Spina Bifida Wisconsin Ltd

Nonprofit profile at a glance

EIN
391594831
IRS 990-EZ coverage
2013–2024
Forms available
Form 990 2011, Form 990-EZ 2024
Location
Wauwatosa, WI, USA
Phone
4146079061
Rating
65
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Nerve, Muscle and Bone Diseases

Official website

Reported finances

Revenue
$102,498
Expenses
$100,937
Assets
$135,386
Liabilities
$0

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

12 people listed

Executive titles in this filing

  • KAREN DREZEWIECKI (PRESIDENT, DIRECTOR)
  • VIRGINIA ZIGNEGO (EXECUTIVE DIRECTOR (2025-CURRENT))

People named in this filing

  • MICHAEL MOULTON (TREASURER, DIRECTOR)
  • EILEEN SHERBURNE (DIRECTOR)
  • MELANIE DONNERBAUER (DIRECTOR)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The organization provides programs and assistance to persons with spina bifida and provides educational services regarding spina bifida to the general public. The mission of the organization is to enhance the lives of persons of all ages with spina bifida by encouraging care, treatment, education, independence, health, accessibility and social interaction, to enhance their growth and development. The organization strives to raise the level of awareness about the particular needs of persons with spina bifida.

What it reported doing in 2024

The organization attempts to educate and enhance the lives of those affected by spina bifida through the distribution of newsletters and education materials, through group meetings with related speakers, through scholarships, family services, medical and other expense reimbursement and in other ways. The association also promotes education related to taking folic acid during pregnancy to reduce incidences of spina bifida.

Operating model

Revenue model
Donor-supported. 62% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.

Rating breakdown

  • Financial Efficiency: 49
  • Transparency & Controls: 82
  • Sustainability: 55
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 51.6%; rating input score 52
  • Program expense ratio: 44.3%; rating input score 44

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: 1.5%; rating input score 39; 39th percentile among comparable filings
  • Total-asset coverage ratio: 1.34; rating input score 69; 69th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 76; 76th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings

Growth

  • Program expense growth: 7.7% per year; rating input score 100; 55th percentile among comparable filings
  • Revenue growth: 1.4% per year; rating input score 100; 28th percentile among comparable filings
  • Asset growth: 0.6% per year; rating input score 100; 29th percentile among comparable filings

Details

  • Where the money goes: 51.6% of revenue deployed · 44.3% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 3 filed program accomplishments · $45K in reported program spending
  • Leadership: top reported pay $0 · 12 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 11 filing years from 2013 to 2024
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Financial Efficiency: Mission deployment rate scored 52/100.
  • Moderate — Financial Efficiency: Program expense ratio scored 44/100.
  • Moderate — Sustainability: Operating margin scored 39/100.