Spina Bifida Assocation of Jacksonville Inc

What it reported doing in 2024

Advocacy and education: the organization actively raises awareness about spina bifida, a neural tube defect resulting from the spine's failure to close properly during early pregnancy. We provide information and support to families, helping them navigate the challenges associated with the condition. Support programs: spina bifida of jacksonville offers various programs, including: -medical resources: provide information and specialized medical resources. We also provide medical reimbursements for medically necessary items not covered by insurance. -medical supplies: assisting families in obtaining necessary medical equipment. -medical education opportunities: sponsor families at an annual disabilities and medical services convention. -transportation resources: offering support for transportation needs. -family socials and gatherings: events and dinners for the whole family catered to their unique needs. "love what drives you" campaign: this initiative collaborates with the automotive community to enhance mobility for families affected by spina bifida. The campaign focuses on updating vehicles with ramps and adaptive equipment, which are then donated to families in need. Our goal is to "fuel independence in the spina bifida community." fostering community partnerships to raise funds and open up opportunities for our families. The amelia concours is an example. Annual jacksonville grand prix: spina bifida of jacksonville organizes the jacksonville grand prix, a go-kart racing event that has raises approximately 10,000 for the organization. This event not only serves as a fundraiser but also as a unique community gathering to support the cause. Avonlea antiques and art booth is stocked with donated items. Not only is it great exposure for us but is also good advertising. Through these initiatives, spina bifida of jacksonville continues to make significant strides in supporting individuals and families impacted by spina bifida, fostering a sense of community, and enhancing the quality of life for those affected.

Financial Efficiency

• Mission deployment rate: 100%; rating input score 100
• Program expense ratio: 100%; rating input score 100
• Fundraising efficiency: Limited

Transparency & Controls

• Consistency checks: 91.7%; rating input score 92; 22nd percentile among comparable filings
• Pay-setting controls: Limited
• Foreign activity oversight: Limited
• Grant itemization coverage: Limited
• Major donor itemization: Yes; rating input score 100
• Related-party transparency: Limited

Accountability

• Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
• Governance controls: 2 of 8 controls in place; rating input score 25
  • Conflict-of-interest policy: Fail
  • Whistleblower policy: Fail
  • Document-retention policy: Fail
  • CEO compensation review process: NotApplicable
  • Other executive compensation review process: Fail
  • Form 990 shared with the board: Pass
  • Board meeting minutes documented: Pass
  • Audit committee oversight: Missing
  • Independent financial-statement audit: Fail

Sustainability

• Operating margin: -160%; rating input score 15; 15th percentile among comparable filings
• Total-asset coverage ratio: 4.79; rating input score 48; 48th percentile among comparable filings
• Liabilities to assets ratio: 0.02; rating input score 26; 26th percentile among comparable filings
• Officer compensation ratio: 14.9%; rating input score 14; 14th percentile among comparable filings

Growth

• Program expense growth: 24.2% per year; rating input score 100; 87th percentile among comparable filings
• Revenue growth: -32.1% per year; rating input score 0; 13th percentile among comparable filings
• Asset growth: 19.1% per year; rating input score 100; 90th percentile among comparable filings