Sotos Syndrome Support Association
Nonprofit profile at a glance
- EIN
- 431568496
- IRS 990-EZ coverage
- 2020–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2015
- Location
- Wheaton, IL, USA
- Phone
- 8882467772
- Rating
- 69
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Specifically Named Diseases
Reported finances
- Revenue
- $109,127
- Expenses
- $44,038
- Assets
- $294,367
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
13 people listed
Executive titles in this filing
- MICHELLE MERCADO (PRESIDENT &)
People named in this filing
- MICHELLE MERCADO (PRESIDENT &)
- BRIAN HAYS (VICE PRESIDE)
- DEJA CRUZ (VICE PRESIDE)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Support and education for sotos syndrome families
What it reported doing in 2025
Online registration for conference, website, newsletters, educational information to assist sotos syndrome families, friends, doctors, teachers, and professionals in dealing with the syndrome which are utilized by over 300 members during the year.
Operating model
- Revenue model
- Mixed. Its operating money came from several sources; no one source provided a clear majority.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work.
Rating breakdown
- Financial Efficiency: 54
- Transparency & Controls: 82
- Sustainability: 81
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 34.3%; rating input score 34
- Program expense ratio: 86.9%; rating input score 87
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: 59.6%; rating input score 95; 95th percentile among comparable filings
- Total-asset coverage ratio: 6.68; rating input score 97; 97th percentile among comparable filings
- Liabilities to assets ratio: Limited
- Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings
Growth
- Program expense growth: 38.1% per year; rating input score 100; 87th percentile among comparable filings
- Revenue growth: 30.1% per year; rating input score 100; 90th percentile among comparable filings
- Asset growth: 3.5% per year; rating input score 100; 37th percentile among comparable filings
Details
- Where the money goes: 34.3% of revenue deployed · 86.9% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 2 filed program accomplishments · $38K in reported program spending
- Leadership: top reported pay $0 · 13 people listed
- Consistency: 6 of 6 current checks pass
- Schedules: 3 filed schedules
- Filing history: 6 filing years from 2020 to 2025
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Mission deployment rate scored 34/100.