Skraban-deardorff Syndrome Foundation
Nonprofit profile at a glance
- EIN
- 882790552
- IRS 990-EZ coverage
- 2024–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2023
- Location
- Indian Trail, NC, USA
- Phone
- 7043369312
- Rating
- 56
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Birth Defects and Genetic Diseases
Reported finances
- Revenue
- $149,207
- Expenses
- $13,242
- Assets
- $323,060
- Liabilities
- $1,040
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
9 people listed
Executive titles in this filing
- KYLE HILLMAN (President)
- EMILY GERST (Vice President)
People named in this filing
- LISA PATTERSON (OFFICER)
- KYLE HILLMAN (President)
- EMILY GERST (Vice President)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To support individuals and families worldwide who are affected by skraban-deardoff syndrome with education, research, and outreach.
What it reported doing in 2025
To support individuals and families wordlwide who are affected by skraban-deardoff syndrome with education, research, and outreach
Operating model
- Revenue model
- Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
- Distribution model
- Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and program spending has declined or grown slowly.
Rating breakdown
- Financial Efficiency: 31
- Transparency & Controls: 82
- Sustainability: 88
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 6.4%; rating input score 6
- Program expense ratio: 72.6%; rating input score 73
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Limited
Sustainability
- Operating margin: 91.1%; rating input score 99; 99th percentile among comparable filings
- Total-asset coverage ratio: 24.4; rating input score 99; 99th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 43; 43rd percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings
Growth
- Program expense growth: -93.3% per year; rating input score 0; 2nd percentile among comparable filings
- Revenue growth: 37.9% per year; rating input score 100; 93rd percentile among comparable filings
- Asset growth: 53.8% per year; rating input score 100; 93rd percentile among comparable filings
Details
- Where the money goes: 6.4% of revenue deployed · 72.6% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $10K in reported program spending
- Leadership: top reported pay $0 · 9 people listed
- Consistency: 7 of 7 current checks pass
- Schedules: 3 filed schedules
- Filing history: 2 filing years from 2024 to 2025
- Contacts: How to reach this organization
- Money network: Resolved incoming and outgoing counterparties from filed money flows.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 6/100.
- High — Growth: Program expense growth scored 0/100.
- Moderate — Sustainability: Liabilities to assets ratio scored 43/100.