Sjogren's Foundation Inc
Nonprofit profile at a glance
- EIN
- 112779073
- IRS 990 coverage
- 2010–2024
- Forms available
- Form 990 2024, Form 990-T 2024
- Location
- Reston, VA, USA
- Phone
- 3015304420
- Rating
- 81
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Diseases of Specific Organs
Reported finances
- Revenue
- $5,277,586
- Expenses
- $4,223,979
- Assets
- $5,240,223
- Liabilities
- $1,212,835
Source: IRS Form 990. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
23 people listed
Executive titles in this filing
- JANET CHURCH (PRESIDENT AND CEO)
Highest reported compensation
- JANET CHURCH (PRESIDENT AND CEO): $368,360 total reported compensation
- KATHERINE MORLAND HAMMITT (VP OF MEDICAL AND SCIENTIFIC AFFAIRS): $189,280 total reported compensation
- BEN BASLOE (VP OF PHILANTHROPY AND OPERATIONS): $135,085 total reported compensation
Source: IRS Form 990. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
The foundation's mission is to provide education and resources to sjogren's patients and their loved ones, provide credible resources/education to healthcare professionals, serve as the voice of all patients through advocacy and fund innovative research.
What it reported doing in 2024
The sjogren's foundation increased patient support and education programs in 2025 as well as healthcare provider education and awareness about sjogren's and the systemic, multi-faceted nature of the disease. Of note was the expansion of provider outreach through state of sjogren's and the foundation's cme program as well as partnering with external cme programs for specialties and primary care providers. The foundation also increased our advocacy efforts to highlight the importance of continued autoimmune disease research funding, especially for sjogren's and to highlight the importance of supporting the office of autoimmune disease research. We succeeded in getting a new house resolution #245 to affirm april as sjogren's awareness month which included messaging about the need for more research and we held our first congressional briefing on sjogren's. The foundation also continued our dialog with centers for medicare and medicaid for dental coverage. We continued to advance our relationships with clinicians, researchers, government scientists, and corporate scientists who are interested in sjogren's. In june 2025, the foundation work to change the disease name from sjogren's syndrome to sjogren's disease was internationally confirmed by the publication of the initiative in a peer-reviewed publication nature reviews rheumatology.
Operating model
- Revenue model
- Donor-supported. 88% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 82% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and some filing-based governance responses are negative or unanswered.
Rating breakdown
- Financial Efficiency: 70
- Transparency & Controls: 87
- Accountability: 95
- Sustainability: 55
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 68.1%; rating input score 68
- Program expense ratio: 84.1%; rating input score 84
- Fundraising efficiency: $10.04 raised per $1 spent on fundraising; rating input score 38; 38th percentile among comparable filings
Transparency & Controls
- Consistency checks: 94.1%; rating input score 94; 23rd percentile among comparable filings
- Pay-setting controls: 5 of 6 controls in place; rating input score 83
- Compensation committee: Pass
- Independent consultant: Missing
- Other Form 990s reviewed: Pass
- Written employment contract: Pass
- Compensation survey or study: Pass
- Board or committee approval: Pass
- Foreign activity oversight: Limited
- Grant itemization coverage: 89.5%; rating input score 90; 25th percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
- Related-party transparency: Limited
Accountability
- Independent voting board: 100%; rating input score 100; 63rd percentile among comparable filings
- Governance controls: 8 of 9 controls in place; rating input score 89
- Conflict-of-interest policy: Pass
- Whistleblower policy: Pass
- Document-retention policy: Pass
- CEO compensation review process: Pass
- Other executive compensation review process: Fail
- Form 990 shared with the board: Pass
- Board meeting minutes documented: Pass
- Audit committee oversight: Pass
- Independent financial-statement audit: Pass
Sustainability
- Operating margin: 20%; rating input score 77; 77th percentile among comparable filings
- Total-asset coverage ratio: 1.24; rating input score 45; 45th percentile among comparable filings
- Liabilities to assets ratio: 0.23; rating input score 40; 40th percentile among comparable filings
- Officer compensation ratio: 24.8%; rating input score 8; 8th percentile among comparable filings
Growth
- Program expense growth: 7.1% per year; rating input score 100; 51st percentile among comparable filings
- Revenue growth: 7.2% per year; rating input score 100; 56th percentile among comparable filings
- Asset growth: 17.9% per year; rating input score 100; 80th percentile among comparable filings
Details
- Where the money goes: 68.1% of revenue deployed · 84.1% of spending went to programs
- Governance: 17 of 17 board members independent · 8 of 9 filing controls reported
- Programs: 4 filed program accomplishments · $3.6M in reported program spending
- Leadership: top reported pay $368K · 23 people listed · 5 of 6 pay-setting controls reported
- Highest-paid contractors: 1 contractor listed · $126K reported
- Consistency: 34 of 35 current checks pass · 1 finding to review
- Schedules: 8 filed schedules · includes major donors, grants, and executive pay
- Filing history: 14 filing years from 2010 to 2024
- Contacts: How to reach this organization
- Money network: 12 filed money-flow records
- Related organizations: 6 filed related-organization links
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Moderate — Financial Efficiency: Fundraising efficiency scored 38/100.
- Review — Accountability: Governance controls: Other executive compensation review process not reported.
- Moderate — Sustainability: Total-asset coverage ratio scored 45/100.
- High — Sustainability: Officer compensation ratio scored 8/100.
- Review — Transparency & Controls: Domestic grant itemization did not reconcile in the filed values.
- Moderate — Sustainability: Liabilities to assets ratio scored 40/100.