Sickle Gene International Foundation
Nonprofit profile at a glance
- EIN
- 854012206
- IRS 990-EZ coverage
- 2025–2025
- Forms available
- Form 990-EZ 2025, Form 990-N 2024
- Location
- Villanova, PA, USA
- Phone
- 9149070633
- Rating
- 79
- Verdict
- SUPPORTED
- Rating confidence
- Moderate
- Sector
- Alliance/Advocacy Organizations
Reported finances
- Revenue
- $78,298
- Expenses
- $40,730
- Assets
- $50,573
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
8 people listed
Executive titles in this filing
- Kofi Boateng (Executive Director)
People named in this filing
- Kofi Boateng (Executive Director)
- Dr Jacqueline Owusu McKenzie (Chairperson)
- Linda Kusi (Secretary)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
The mission is to reduce sickle cell disease-associated mortality and morbidity; and improve the lives of people living with sickle cell disease in Sub-Saharan Africa through: Providing screening to identify those with sickle cell disease as early in life as possible, Providing disease-modifying medications and state-of-the-art interventions to decrease suffering and disabling complications, and Promoting culturally appropriate psychosocial support to improve quality of life
What it reported doing in 2025
In November 2025, Sickle Gene International Foundation (SGIF) organized and hosted a fact-finding conference and meetings in Ghana, West Africa to establish the state of sickle cell screening and care. In May 2025, SGIF participated in a global conference on sickle cell in Abuja, Nigeria. SGIF made two small grants to assist other organizations.
Operating model
- Revenue model
- Donor-supported. 100% of the money available for current operations came from contributions and gifts.
- Distribution model
- Direct operator. The filing allocates 94% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.
The verdict
SUPPORTED - The filed numbers largely add up and a large share of total spending goes to programs. A relatively small share of available resources goes toward mission work and total assets are small relative to annual expenses; liquid coverage is unknown.
Rating breakdown
- Financial Efficiency: 70
- Transparency & Controls: 100
- Sustainability: 72
- Growth: NotEnoughData
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 52%; rating input score 52
- Program expense ratio: 100%; rating input score 100
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 48%; rating input score 89; 89th percentile among comparable filings
- Total-asset coverage ratio: 1.24; rating input score 53; 53rd percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: Limited
- Revenue growth: Limited
- Asset growth: Limited
Details
- Where the money goes: 52% of revenue deployed · 100% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 1 filed program accomplishment · $41K in reported program spending
- Leadership: top reported pay $0 · 8 people listed
- Consistency: 9 of 9 current checks pass
- Schedules: 3 filed schedules
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Mission deployment rate scored 52/100.
- Review — Sustainability: Total-asset coverage ratio scored 53/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.