Shank2 Foundation
Nonprofit profile at a glance
- EIN
- 863723736
- IRS 990-EZ coverage
- 2024–2025
- Forms available
- Form 990 2021, Form 990-EZ 2025, Form 990-N 2023
- Location
- Miami, FL, USA
- Phone
- 9043022807
- Rating
- 47
- Verdict
- MIXED
- Rating confidence
- Moderate
- Sector
- Alliance/Advocacy
Reported finances
- Revenue
- $60,953
- Expenses
- $25,434
- Assets
- $84,846
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.
Leadership & pay
5 people listed
Executive titles in this filing
- Benjamin Hutz (President, Treasurer)
People named in this filing
- Benjamin Hutz (President, Treasurer)
- Alexandra Lanjewar (Secretary)
- Polly Appel (Board Member)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
To improve research, raise awareness, and provide support for those impacted by the rare genetic disorder: SHANK2
What it reported doing in 2025
Grant funded for research by Aaron Kuan of Yale University in the amount of $25,000 for the SHANK2 Innovation Grant 2025 for the project "A Novel Pan-Expansion Microscopy Approach to Bridge Molecular Alterations and Circuit-level Dysfunction Underlying SHANK2-Related Disorders".
Operating model
- Revenue model
- Other-operating. 92% of the money available for current operations came from other operating revenue.
- Distribution model
- Cannot be determined from the filing. The filing does not provide enough consistent spending detail to tell whether the nonprofit works directly or through others.
The verdict
MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of total spending goes to programs.
Rating breakdown
- Financial Efficiency: 0
- Transparency & Controls: 100
- Sustainability: 80
- Growth: 60
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 0.3%; rating input score 0
- Program expense ratio: 0.7%; rating input score 1
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 58.3%; rating input score 92; 92nd percentile among comparable filings
- Total-asset coverage ratio: 3.34; rating input score 77; 77th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: -25% per year; rating input score 0; 16th percentile among comparable filings
- Revenue growth: 14% per year; rating input score 100; 85th percentile among comparable filings
- Asset growth: 45% per year; rating input score 100; 94th percentile among comparable filings
Details
- Where the money goes: 0.3% of revenue deployed · 0.7% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 4 filed program accomplishments · $175 in reported program spending
- Leadership: top reported pay $0 · 5 people listed
- Consistency: 8 of 9 current checks pass · 1 finding to review
- Schedules: 3 filed schedules
- Filing history: 2 filing years from 2024 to 2025
- Contacts: How to reach this organization
- Money network: Resolved incoming and outgoing counterparties from filed money flows.
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- High — Financial Efficiency: Mission deployment rate scored 0/100.
- High — Financial Efficiency: Program expense ratio scored 1/100.
- Moderate — Transparency & Controls: Part III transfer expenses within program total did not reconcile in the filed values.
- High — Growth: Program expense growth scored 0/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.