Sca27b Ataxia Foundation

Nonprofit profile at a glance

EIN
931451051
IRS 990-EZ coverage
2023–2025
Forms available
Form 990-EZ 2025
Location
Lynchburg, VA, USA
Phone
6159000234
Rating
66
Verdict
SUPPORTED
Rating confidence
Moderate
Sector
Mutual/Membership Benefit N.E.C.

Reported finances

Revenue
$51,186
Expenses
$7,670
Assets
$74,453
Liabilities
$0

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

9 people listed

Executive titles in this filing

  • Mary Hogan (Executive Director)
  • Jennifer Austin (President of the Board of Directors)

People named in this filing

  • Mary Hogan (Executive Director)
  • Jennifer Austin (President of the Board of Directors)
  • Eric Legg (board member)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Our mission is to improve the quality of life of individuals and families affected by SCA27b while promoting research and treatments for Ataxia. We bring awareness, education, and resources to individuals and families affected by SCA27b. The foundation actively connects patients to Ataxia experts and researchers to accelerate solutions for SCA27b.

What it reported doing in 2025

Year 2025: 1) Attended and presented at patient & researcher conferences - Annual Ataxia Conference (Las Vegas), Ataxia Clinical Training (Las Vegas), International Congress of Ataxia Research (ICAR)(Amsterdam), EuroAtaxia (Amsterdam), National Ataxia Foundation's Face to Face meeting (Minneapolis), National Organization of Rare Diseases, TN chapter (Nashville). 2) Maintained & updated educational website sca27b.org, 3) Hosted monthly Zoom meetings for patients with invited guest speakers, 4) Collaborated with many other ataxia organizations: NAF, EuroAtaxia, FARA, Ataxie Canada, Ataxia UK, Ataxia Global Initiative (AGI). 5) Active member of AGI's SCA27B study group. 6) Raised funds to provide research grants in 2026. 7) Maintained private & public Facebook SCA27B Facebook groups. 7) Hosted webinars for genetic testing to members. 8) Distributed surveys for research data and will be published in 2026 with UChicago for paper on lifestyle/environmental factors that influence disease onset and progression. 9) Foundation membership is now over 1400 patients and researchers

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

SUPPORTED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and reported officer compensation is a large share of total spending, which may reflect staffing concentration.

Rating breakdown

  • Financial Efficiency: 47
  • Transparency & Controls: 82
  • Sustainability: 87
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 15%; rating input score 15
  • Program expense ratio: 100%; rating input score 100

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 51st percentile among comparable filings
  • Major donor itemization: Limited

Sustainability

  • Operating margin: 85%; rating input score 98; 98th percentile among comparable filings
  • Total-asset coverage ratio: 9.71; rating input score 91; 91st percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 66; 66th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings

Growth

  • Program expense growth: 89.5% per year; rating input score 100; 96th percentile among comparable filings
  • Revenue growth: 81.4% per year; rating input score 100; 98th percentile among comparable filings
  • Asset growth: 94.3% per year; rating input score 100; 98th percentile among comparable filings

Details

  • Where the money goes: 15% of revenue deployed · 100% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 1 filed program accomplishment · $8K in reported program spending
  • Leadership: top reported pay $0 · 9 people listed
  • Consistency: 9 of 9 current checks pass
  • Schedules: 2 filed schedules
  • Filing history: 3 filing years from 2023 to 2025
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Financial Efficiency: Mission deployment rate scored 15/100.
  • Review — Sustainability: Officer compensation ratio scored 56/100.