Save Benny and Josh Inc D/b/a Cure Canavan Fund

Nonprofit profile at a glance

EIN
834489648
IRS 990 coverage
2019–2019
Forms available
Form 990 2019
Location
Brooklyn, NY, USA
Phone
9177555700
Rating
54
Verdict
MIXED
Rating confidence
Moderate

Official website

Reported finances

Revenue
$195,248
Expenses
$24,183
Assets
$171,669
Liabilities
$604

Source: IRS Form 990. Selected filing: tax year 2019. Amounts in USD.

Leadership & pay

4 people listed

Executive titles in this filing

  • JENNIE LANDSMAN (PRESIDENT)
  • GARY LANDSMAN (VICE-PRESIDENT)

People named in this filing

  • JOSHUA SCHANZER (DIRECTOR)
  • JENNIE LANDSMAN (PRESIDENT)
  • GARY LANDSMAN (VICE-PRESIDENT)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2019. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Save benny and josh, inc. D/b/a cure canavan fund, formed in 2019, is a support organization for the treatment and cure of canavan disease. Their mission is to raise awareness and fundraising to find a cure for this debvilitating disease. The funds raised by the organization are donated to rowan university, school of osteopathic medicine located in stratford, nj to support the treatment and research of canavan disease. The organization has researched and visited the school, and has done its due diligence in terms of reviewing the school's ability to help the organization fulfill its mission. The organization will, in future years, work with additional universities and medical facilities as they are identified and found to have relevant and reputable medical programs, and those facilities will be considered for funding as the organization grows and has increased revenue.

What it reported doing in 2019

Raise awareness and fundraising to find a cure for this debvilitating disease. The funds raised by the organization are donated to rowan university, school of osteopathic medicine located in stratford, nj to support the treatment and research of canavan disease. The organization has researched and visited the school, and has done its due diligence in terms of reviewing the school's ability to help the organization fulfill its mission. The organization will, in future years, work with additional universities and medical facilities as they are identified and found to have relevant and reputable medical programs, and those facilities will be considered for funding as the organization grows and has increased revenue.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

MIXED - The filed numbers largely add up and revenue comfortably covers expenses. A relatively small share of available resources goes toward mission work and a relatively small share of voting board members are independent.

Rating breakdown

  • Financial Efficiency: 48
  • Transparency & Controls: 92
  • Accountability: 12
  • Sustainability: 87
  • Growth: NotEnoughData

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 11.7%; rating input score 12
  • Program expense ratio: 94.2%; rating input score 94
  • Fundraising efficiency: $148.48 raised per $1 spent on fundraising; rating input score 90; 90th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 0%; rating input score 0; 6th percentile among comparable filings
  • Governance controls: 2 of 7 controls in place; rating input score 29
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Fail
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Fail
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 87.6%; rating input score 99; 99th percentile among comparable filings
  • Total-asset coverage ratio: 7.1; rating input score 85; 85th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 61; 61st percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 71; 71st percentile among comparable filings

Growth

  • Program expense growth: Limited
  • Revenue growth: Limited
  • Asset growth: Limited

Details

  • Where the money goes: 11.7% of revenue deployed · 94.2% of spending went to programs
  • Governance: 0 of 4 board members independent · 2 of 7 filing controls reported
  • Programs: 2 filed program accomplishments · $23K in reported program spending
  • Leadership: top reported pay $0 · 4 people listed
  • Consistency: 14 of 14 current checks pass
  • Schedules: 3 filed schedules · includes major donors
  • Contacts: How to reach this organization
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

Grant-readiness screening is separate from the live rating, not a measure of program quality. Review the source records before making a grant decision.

  • High — Financial Efficiency: Mission deployment rate scored 12/100.
  • High — Accountability: Independent voting board scored 0/100.
  • High — Accountability: Governance controls: 5 of 7 not reported.
  • High — Grant Readiness: Automatic revocation: this organization had its federal tax-exempt status automatically revoked.