SATB2 Gene Foundation Inc

Nonprofit profile at a glance

EIN
823474637
IRS 990-EZ coverage
2018–2024
Forms available
Form 990-EZ 2024, Form 990-T 2024, Form 990-N 2017
Location
Lilburn, GA, USA
Phone
6788329133
Rating
81
Verdict
STRONG
Rating confidence
Moderate
Sector
Specifically Named Diseases

Reported finances

Revenue
$154,551
Expenses
$114,663
Assets
$136,824
Liabilities
$0

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.

Leadership & pay

9 people listed

Executive titles in this filing

  • Allison Kaczenski (President)
  • David Bright (Vice President)

People named in this filing

  • Allison Kaczenski (President)
  • David Bright (Vice President)
  • Mariana Chuy (Director)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Our mission is to enrich the lives of individuals affected by SATB2-Associated Syndrome, including those diagnosed with the condition and their families, through support, research, and education.

What it reported doing in 2024

Family Support Program: Hosted the 4th biennial Family and Medical Conference that brought together 63 SATB2-Associated Syndrome Families along with medical experts. Provided support to 16 SATB2-Associated Syndrome families through the Clinic and Conference Travel Grant program, bestowing $8,000 in support. In addition, provided three families with an AAC communication device for their SATB2 loved one.

Operating model

Revenue model
Donor-supported. 86% of the money available for current operations came from contributions and gifts.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - The filed numbers largely add up and a large share of total spending goes to programs. A relatively small share of available resources goes toward mission work.

Rating breakdown

  • Financial Efficiency: 64
  • Transparency & Controls: 100
  • Sustainability: 73
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 56.9%; rating input score 57
  • Program expense ratio: 76.8%; rating input score 77

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100

Sustainability

  • Operating margin: 25.8%; rating input score 80; 80th percentile among comparable filings
  • Total-asset coverage ratio: 1.19; rating input score 65; 65th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 76; 76th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings

Growth

  • Program expense growth: 16.7% per year; rating input score 100; 72nd percentile among comparable filings
  • Revenue growth: 5.3% per year; rating input score 100; 49th percentile among comparable filings
  • Asset growth: 3.9% per year; rating input score 100; 41st percentile among comparable filings

Details

  • Where the money goes: 56.9% of revenue deployed · 76.8% of spending went to programs
  • Governance: Filed governance answers
  • Accomplishments: 3 filed program accomplishments · $88K in reported program spending
  • Leadership: top reported pay $0 · 9 people listed
  • Consistency: 8 of 8 current checks pass
  • Schedules: 3 filed schedules
  • Filing history: 7 filing years from 2018 to 2024
  • Contacts: How to reach this organization
  • Money network: Resolved incoming and outgoing counterparties from filed money flows.
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Review — Financial Efficiency: Mission deployment rate scored 57/100.