Sanfilippo Research Foundation Inc

Nonprofit profile at a glance

EIN
043565765
IRS 990 coverage
2011–2018
Forms available
Form 990 2018, Form 990-EZ 2016
Location
Wellesley, MA, USA
Phone
6178994158
Rating
57
Verdict
MIXED
Rating confidence
Moderate
Sector
Fund Raising and/or Fund Distribution

Official website

Reported finances

Revenue
$932,440
Expenses
$26,696
Assets
$1,359,721
Liabilities
$0

Source: IRS Form 990. Selected filing: tax year 2018. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • JENNIFER SIEDMAN (President)

People named in this filing

  • STUART SIEDMAN (VP/TREASURER)
  • JENNIFER SIEDMAN (President)
  • SARAH SHELBY PHD (Secretary)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990. Selected filing: tax year 2018. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To promote awareness of sanfilippo syndrome and raise funds to support research aimed at finding a cure.

What it reported doing in 2018

The organization solicited funds throughout the year.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 94% of its reported program spending out as grants.
  • Includes noncash contributions: Reported contributions include donated property or goods.

The verdict

MIXED - The filed numbers largely add up and program spending has grown recently. A relatively small share of available resources goes toward mission work and a relatively small share of voting board members are independent.

Rating breakdown

  • Financial Efficiency: 35
  • Transparency & Controls: 94
  • Accountability: 25
  • Sustainability: 97
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 2.9%; rating input score 3
  • Program expense ratio: 100%; rating input score 100
  • Fundraising efficiency: Limited

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 62nd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 74th percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 12.5%; rating input score 12; 8th percentile among comparable filings
  • Governance controls: 3 of 7 controls in place; rating input score 43
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Fail
    • Document-retention policy: Fail
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: 97.1%; rating input score 100; 100th percentile among comparable filings
  • Total-asset coverage ratio: 50.93; rating input score 99; 99th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 94; 94th percentile among comparable filings
  • Officer compensation ratio: 0%; rating input score 84; 84th percentile among comparable filings

Growth

  • Program expense growth: 134.6% per year; rating input score 100; 99th percentile among comparable filings
  • Revenue growth: 27.7% per year; rating input score 100; 93rd percentile among comparable filings
  • Asset growth: 34.1% per year; rating input score 100; 93rd percentile among comparable filings

Details

  • Where the money goes: 2.9% of revenue deployed · 100% of spending went to programs
  • Governance: 1 of 8 board members independent · 3 of 7 filing controls reported
  • Programs: 1 filed program accomplishment · $27K in reported program spending
  • Leadership: top reported pay $0 · 8 people listed
  • Consistency: 16 of 16 current checks pass
  • Schedules: 6 filed schedules · includes major donors and grants
  • Filing history: 4 filing years from 2011 to 2018
  • Contacts: How to reach this organization
  • Money network: 1 filed money-flow record
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

Grant-readiness screening is separate from the live rating, not a measure of program quality. Review the source records before making a grant decision.

  • High — Financial Efficiency: Mission deployment rate scored 3/100.
  • High — Accountability: Independent voting board scored 12/100.
  • Moderate — Accountability: Governance controls: 3 of 6 not reported.
  • High — Grant Readiness: Automatic revocation: this organization had its federal tax-exempt status automatically revoked.