Salla Treatment and Research Foundation Inc

Nonprofit profile at a glance

EIN
825186436
IRS 990 coverage
2020–2025
Forms available
Form 990 2025, Form 990-PF 2019
Location
Katonah, NY, USA
Phone
7273485184
Rating
80
Verdict
STRONG
Rating confidence
Standard
Sector
Birth Defects and Genetic Diseases

Official website

Reported finances

Revenue
$288,689
Expenses
$300,465
Assets
$246,991
Liabilities
$213

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

  • JESSICA KLEIN FOGLIO (PRESIDENT)
  • ADAM LEBLANC (VICE PRESIDENT)

Highest reported compensation

  • JESSICA KLEIN FOGLIO (PRESIDENT): $12,000 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

To support and advance salla disease treatments, research, education, awareness, and family networks.

What it reported doing in 2025

4b: ongoing scientific support: the foundation continues to support collaborative scientific research via grants to accelerate the prospects of effective medical treatments and promote scientific discovery for salla disease/free sialic acid storage disorders. All scientific grant proposals are reviewed by the foundations independent scientific advisory board (sab). The sab then provides input to stars board of directors. See schedule i for detail on grants to organizations.

Operating model

Revenue model
Donor-supported. 100% of the money available for current operations came from contributions and gifts.
Distribution model
Grant intermediary. The nonprofit sent 90% of its reported program spending out as grants.

The verdict

STRONG - The filed numbers largely add up and a large share of available resources goes toward mission work. Expenses are high relative to revenue and some filing-based governance responses are negative or unanswered.

Rating breakdown

  • Financial Efficiency: 64
  • Transparency & Controls: 100
  • Accountability: 90
  • Sustainability: 33
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 64.3%; rating input score 64
  • Program expense ratio: 61.7%; rating input score 62
  • Fundraising efficiency: $34.44 raised per $1 spent on fundraising; rating input score 67; 67th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 64th percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: 100%; rating input score 100; 81st percentile among comparable filings
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 6 of 8 controls in place; rating input score 75
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: Pass
    • Other executive compensation review process: NotApplicable
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Missing
    • Independent financial-statement audit: Fail

Sustainability

  • Operating margin: -4.1%; rating input score 27; 27th percentile among comparable filings
  • Total-asset coverage ratio: 0.82; rating input score 36; 36th percentile among comparable filings
  • Liabilities to assets ratio: 0; rating input score 51; 51st percentile among comparable filings
  • Officer compensation ratio: 4%; rating input score 31; 31st percentile among comparable filings

Growth

  • Program expense growth: 10.3% per year; rating input score 100; 68th percentile among comparable filings
  • Revenue growth: 24.5% per year; rating input score 100; 90th percentile among comparable filings
  • Asset growth: 21.3% per year; rating input score 100; 84th percentile among comparable filings

Details

  • Where the money goes: 64.3% of revenue deployed · 61.7% of spending went to programs
  • Governance: 8 of 8 board members independent · 6 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $185K in reported program spending
  • Leadership: top reported pay $12K · 8 people listed
  • Consistency: 26 of 26 current checks pass
  • Schedules: 5 filed schedules · includes major donors and grants
  • Filing history: 6 filing years from 2020 to 2025
  • Contacts: How to reach this organization
  • Money network: 5 filed money-flow records
  • Related organizations: 2 filed related-organization links
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • High — Sustainability: Operating margin scored 27/100.
  • Review — Accountability: Governance controls: Independent financial-statement audit not reported.
  • Moderate — Sustainability: Total-asset coverage ratio scored 36/100.
  • Moderate — Sustainability: Officer compensation ratio scored 31/100.
  • Review — Sustainability: Liabilities to assets ratio scored 51/100.