Rothmund-thomson Syndrome Foundation
Nonprofit profile at a glance
- EIN
- 300585106
- IRS 990-EZ coverage
- 2013–2024
- Forms available
- Form 990-EZ 2024, Form 990-N 2011
- Location
- Chantilly, VA, USA
- Phone
- 7038023167
- Rating
- 85
- Verdict
- STRONG
- Rating confidence
- Moderate
- Sector
- Fund Raising and/or Fund Distribution
Reported finances
- Revenue
- $55,899
- Expenses
- $35,560
- Assets
- $74,975
- Liabilities
- $0
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Amounts in USD.
Leadership & pay
6 people listed
People named in this filing
- Staci Hanson (Chair)
- Kara Hanson (Treasurer)
- Bekkah Blankers (Vice Chair)
Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.
Source: IRS Form 990-EZ. Selected filing: tax year 2024. Names and roles reflect this filing, not necessarily current officeholders.
Overview
Mission
Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes
What it reported doing in 2024
Provided a funding to Baylor College of Medicine to sponsor continued research on RTS and to fund RTS clinical studies and transfer of patient registry to Genial.
Operating model
- Revenue model
- Donor-supported. 88% of the money available for current operations came from contributions and gifts.
- Distribution model
- Grant intermediary. The nonprofit sent 100% of its reported program spending out as grants.
The verdict
STRONG - The filed numbers largely add up and a large share of total spending goes to programs. A relatively small share of available resources goes toward mission work and reported officer compensation is a large share of total spending, which may reflect staffing concentration.
Rating breakdown
- Financial Efficiency: 72
- Transparency & Controls: 100
- Sustainability: 74
- Growth: 100
Detailed rating inputs
Financial Efficiency
- Mission deployment rate: 59%; rating input score 59
- Program expense ratio: 92.7%; rating input score 93
Transparency & Controls
- Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
- Major donor itemization: Yes; rating input score 100
Sustainability
- Operating margin: 36.4%; rating input score 85; 85th percentile among comparable filings
- Total-asset coverage ratio: 2.11; rating input score 66; 66th percentile among comparable filings
- Liabilities to assets ratio: 0; rating input score 68; 68th percentile among comparable filings
- Officer compensation ratio: 0%; rating input score 56; 56th percentile among comparable filings
Growth
- Program expense growth: 8.4% per year; rating input score 100; 69th percentile among comparable filings
- Revenue growth: 8.5% per year; rating input score 100; 79th percentile among comparable filings
- Asset growth: 1.3% per year; rating input score 100; 44th percentile among comparable filings
Details
- Where the money goes: 59% of revenue deployed · 92.7% of spending went to programs
- Governance: Filed governance answers
- Accomplishments: 3 filed program accomplishments · $33K in reported program spending
- Leadership: top reported pay $0 · 6 people listed
- Consistency: 9 of 9 current checks pass
- Schedules: 3 filed schedules
- Filing history: 12 filing years from 2013 to 2024
- Contacts: How to reach this organization
- Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
- People: Everyone the filings name, and which of them the filings identify by more than a name.
Key Signals
Signals prioritize questions for review. They are not findings of misconduct.
- Review — Financial Efficiency: Mission deployment rate scored 59/100.
- Review — Sustainability: Officer compensation ratio scored 56/100.