Rocky Mountain Down Syndrome Association Inc

Nonprofit profile at a glance

EIN
742237307
IRS 990 coverage
2012–2025
Forms available
Form 990 2025, Form 990-EZ 2009
Location
Aurora, CO, USA
Phone
3037971699
Rating
85
Verdict
STRONG
Rating confidence
Moderate
Sector
Health

Official website

Reported finances

Revenue
$808,985
Expenses
$820,951
Assets
$886,081
Liabilities
$265,914

Source: IRS Form 990. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

14 people listed

Highest reported compensation

  • HEIDI HANES (EXECUTIVE DI): $144,256 total reported compensation

Source: IRS Form 990. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

The mission of rocky mountain down syndrome association is to assure inclusion and enhance independence of people with down syndrome. We achieve this by providing education, resources and support in partnership with individuals, families, professionals, and the community.

What it reported doing in 2025

Rmdsa provides direct programming and services to more than 6,000 people living in the rocky mountain region living with down syndrome. Rmdsa is also the preeminent organization in the rocky mountain region dedicated to serving the needs of expectant and new mothers of children with down syndrome. Rmdsa provides "new parent" materials to those identified to the organization and builds a long-term relationship of support with these mothers and families. Rmdsa provides resources, educational seminars/trainings, community group meetings, electronic/mailed bi-monthly newsletters, and acts as a clearing house of needed contact information for service providers to families, caregivers, and individuals living with down syndrome.

Operating model

Revenue model
Mixed. Its operating money came from several sources; no one source provided a clear majority.
Distribution model
Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - A large share of available resources goes toward mission work and the filed numbers largely add up. Fundraising costs are high for each dollar raised and expenses are high relative to revenue.

Rating breakdown

  • Financial Efficiency: 80
  • Transparency & Controls: 92
  • Accountability: 95
  • Sustainability: 30
  • Growth: 100

Detailed rating inputs

Financial Efficiency

  • Mission deployment rate: 86.1%; rating input score 86
  • Program expense ratio: 84.7%; rating input score 85
  • Fundraising efficiency: $9.74 raised per $1 spent on fundraising; rating input score 34; 34th percentile among comparable filings

Transparency & Controls

  • Consistency checks: 100%; rating input score 100; 63rd percentile among comparable filings
  • Pay-setting controls: Limited
  • Foreign activity oversight: Limited
  • Grant itemization coverage: Limited
  • Major donor itemization: Yes; rating input score 100
  • Related-party transparency: Limited

Accountability

  • Independent voting board: 100%; rating input score 100; 64th percentile among comparable filings
  • Governance controls: 7 of 8 controls in place; rating input score 88
    • Conflict-of-interest policy: Pass
    • Whistleblower policy: Pass
    • Document-retention policy: Pass
    • CEO compensation review process: NotApplicable
    • Other executive compensation review process: Fail
    • Form 990 shared with the board: Pass
    • Board meeting minutes documented: Pass
    • Audit committee oversight: Pass
    • Independent financial-statement audit: Pass

Sustainability

  • Operating margin: -1.5%; rating input score 26; 26th percentile among comparable filings
  • Total-asset coverage ratio: 1.08; rating input score 45; 45th percentile among comparable filings
  • Liabilities to assets ratio: 0.3; rating input score 19; 19th percentile among comparable filings
  • Officer compensation ratio: 17.6%; rating input score 20; 20th percentile among comparable filings

Growth

  • Program expense growth: 6% per year; rating input score 100; 42nd percentile among comparable filings
  • Revenue growth: 4.2% per year; rating input score 100; 33rd percentile among comparable filings
  • Asset growth: 8.4% per year; rating input score 100; 50th percentile among comparable filings

Details

  • Where the money goes: 86.1% of revenue deployed · 84.7% of spending went to programs
  • Governance: 12 of 12 board members independent · 7 of 8 filing controls reported
  • Programs: 1 filed program accomplishment · $695K in reported program spending
  • Leadership: top reported pay $144K · 14 people listed
  • Consistency: 32 of 32 current checks pass
  • Schedules: 6 filed schedules · includes major donors
  • Filing history: 13 filing years from 2012 to 2025
  • Contacts: How to reach this organization
  • Money network: 2 filed money-flow records
  • Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
  • People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

  • Moderate — Financial Efficiency: Fundraising efficiency scored 34/100.
  • High — Sustainability: Operating margin scored 26/100.
  • Review — Accountability: Governance controls: Other executive compensation review process not reported.
  • Moderate — Sustainability: Total-asset coverage ratio scored 45/100.
  • High — Sustainability: Liabilities to assets ratio scored 19/100.
  • High — Sustainability: Officer compensation ratio scored 20/100.