RASopathies Network USA

Nonprofit profile at a glance

EIN: 273775851
IRS 990-EZ coverage: 2010–2025
Forms available: Form 990 2020, Form 990-EZ 2025, Form 990-N 2014
Location: Davis, CA, USA
Phone: 4128606618
Rating: 86
Verdict: STRONG
Rating confidence: Moderate
Sector: Voluntary Health Associations & Medical Disciplines N.E.C.

Reported finances

Revenue: $135,663
Expenses: $87,973
Assets: $90,823
Liabilities: $31

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Amounts in USD.

Leadership & pay

8 people listed

Executive titles in this filing

Beth Stronach (President)

People named in this filing

Lisa Schoyer (Secretary)
Beth Stronach (President)
Cara Borian (Director)

Selected names, not a complete roster or a statement of current roles. Open leadership details for the complete filed list.

Source: IRS Form 990-EZ. Selected filing: tax year 2025. Names and roles reflect this filing, not necessarily current officeholders.

Overview

Mission

Our mission is to advance research of the rasopathies by bringing together families, clinicians, and scientists.

What it reported doing in 2025

Every odd year, biennially, rasopathies network USA produces and convenes the international rasopathies symposium providing a venue for a scientific conversation between clinicians, researchers, trainees and affected families to share and discuss clinical issues and basic science, and set forth a framework for future research, translational applications directed towards therapy, and best clinical practices for ras/mapk pathway syndromes.

Operating model

Revenue model: Cannot be determined from the filing. The filing does not provide enough consistent revenue detail to tell how this nonprofit funds its work.
Distribution model: Direct operator. The filing allocates 100% of reported program-service expenses outside its grant, affiliate-payment, and member-benefit lines. This expense classification does not rule out separately announced grant awards.

The verdict

STRONG - The filed numbers largely add up and a large share of available resources goes toward mission work. Liabilities are high compared with assets.

Rating breakdown

Financial Efficiency: 74
Transparency & Controls: 100
Sustainability: 71
Growth: 100

Detailed rating inputs

Financial Efficiency

Mission deployment rate: 61.5%; rating input score 62
Program expense ratio: 94.9%; rating input score 95

Transparency & Controls

Consistency checks: 100%; rating input score 100; 52nd percentile among comparable filings
Major donor itemization: Yes; rating input score 100

Sustainability

Operating margin: 35.2%; rating input score 85; 85th percentile among comparable filings
Total-asset coverage ratio: 1.03; rating input score 60; 60th percentile among comparable filings
Liabilities to assets ratio: 0; rating input score 47; 47th percentile among comparable filings
Officer compensation ratio: 0%; rating input score 63; 63rd percentile among comparable filings

Growth

Program expense growth: 9.6% per year; rating input score 100; 58th percentile among comparable filings
Revenue growth: 9.6% per year; rating input score 100; 63rd percentile among comparable filings
Asset growth: 9.3% per year; rating input score 100; 57th percentile among comparable filings

Details

Where the money goes: 61.5% of revenue deployed · 94.9% of spending went to programs
Governance: Filed governance answers
Accomplishments: 1 filed program accomplishment · $83K in reported program spending
Leadership: top reported pay $0 · 8 people listed
Consistency: 7 of 7 current checks pass
Schedules: 3 filed schedules
Filing history: 6 filing years from 2010 to 2025
Contacts: How to reach this organization
Grant readiness: Federal tax and exclusion status, award history, and grant-maker relationships.
People: Everyone the filings name, and which of them the filings identify by more than a name.

Key Signals

Signals prioritize questions for review. They are not findings of misconduct.

Moderate — Sustainability: Liabilities to assets ratio scored 47/100.